...and NeuroTalk is just a small part of it. And this little corner about PD is an even smaller division of that. It seems qbvious to me that there is much more than PD here. More importantly, there has been the introduction of consideration of suicide. We are not qualified to deal with this beyond what has been offered. -Rick

Check out www.psychcentral.com. It is an amazing site.

mouka

I don't want you to leave here with the opinion that no ones cares are not in your interest. The people here in the majority have parkinson's and know the inside and outside of this disease. i do not have Parkinson's I have had many problems in my life and have three times been given a date of demise. The latest is now 2 years overdue and I am still here. I have a very long list [since I first joined back in 1979 I think] when it was then another site called Braintalk] , of mailing address that no way can I respond to. I don't post here much anymore but you seem to have drawn me in and so for what it is worth here is my response to you.

No one doctor has the right answer but 2 or even 3 may hit on the right one. You have to wait it seems to return to the States and see them so you have nothing to lose to just sit down and tell yourself to take it easy and let time go by. it does for us all and it will for you. If there is nothing you can do at this time just wait! Get thee away from Parkinson's and stay here and read and talk with us. You will learn many coping skills that not only refer to parkinson's but to life itself.

During my times of trial I have found great comfort in the Als forum where I first started at Braintalk. I found a lot of pain and hope and a really harsh usage of the treatment of people who had no other ways of communication cut off from the help they so desperately needed and yet here I am because these sites are the the most honest there is on the net.

So don't be driven off by anyone's honest opinion for without honesty we have nothlng.

Don't take for granted anything anyone says including me and if i say something to offend [and I rarely do ha ha] just relax sit back and prove me wrong.

bye friend

I will sound like I am beating a dead horse constantly. But I have noticed that I am biting my tongue without even meaning to do it. It just happens. I also have noticed I am doing it too when I am trying to go to sleep.
Am I losing it or are these all symptoms of PD or some other neurological disease?

Is it at all possible that you are experiencing something injurious from your environment?

Not to limit anyone's thinking, but manganese comes to mind.

You need to have a complete whole health work up, not just a focus on PD.

Try to enjoy your vacation for now and then make appts when you get back home.
You could even seek out some expert MDs while on away from home online, and make the appts ahead of time online or by phone, so you can get in sooner when you are at home.

Best wishes on your health journey..

mouka-

What percentage of ypur symptoms did you first observe in your books and what percent did you first observe in your body?

Could you be self-generating this problem? How were your relationships with others prior to this? Are you gaining anything from being "sick"?

Psychogenic illness is real but it requires a different doctor. -rickb

I am not making stuff up if that's what you mean. The twitching in my muscles are real. The jerks in my legs are real. The numbness and cold skin on my left arm is real. The insomnia is real. My tongue constantly pushing against my mouth is real. Excessive sweating is real. Constant anxiety is real. Stiff muscles are all real. My voice becoming softer is also real. My frequent trips to the bathroom to pee a little are all too real.
I am pretty sure I left out some other stuff. But my symptoms are as real as it gets.

I am following this thread and first want to say that you can see multiple docs searching but in the end PD is a clinical diagnosis based on observation. In being an academic, you know what confirmation bias is. There is a 30% diagnostic error rate, and I suspect it is even higher than that because telling someone they have Idiopathic PD is not so difficult when there are many things that cause PD like symptoms.

I recommend skipping more doctors and having a DATscan done. You will pay around $2000 but if it confirms what you think it is, or what doctors say it isn't then the peace of mind is priceless. This way you can go to a neurologist with somer hard evidence and not lose years your life due to misdiagnosis or delayed diagnosis.

Psychogenic disorders are not so uncommon and should not be treated lightly. It can also be very disabling in and of itself.

Conductor,

The trouble with the DatScan is that it doesn't 'prove' you have pd, it just demonstrates you have low dopamine. It's less helpful in showing rate or pace of activity, or predicting future decline. And in an already pessimistic person, it's not going to help them pull out of that state. And as a neurologist once confided to me off the record, many people who are below par in producing dopamine narrowly avoid the diagnostic net of pd because they address the root causes, generally stress related, and correct them. You stand a better chance of succeeding at this if you don't buy into the dx of pd with its woe inducing prognosis. Pd is a matter of degree.

just bumping this up.
you can lead a horse to water ........