Parkinson's Disease Tulip


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Old 09-12-2015, 01:53 PM #21
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This greatly saddens me. But Ron was quite an advocate, leaving us with a lot of hope.

It was via these forums (BrainTalk, then NeuroTalk) that I first met Ron Hutton. He had been diagnosed with Parkinson's a few years longer than I (I was dx in 1994 - Ron was dx in 1991). This is proof that most PD is slow in progression.

Ron volunteered with several of of the same offline group's as I (Grassroots Connection, Pipeline Project, and PLWP). When I was in Germany promoting a trial in which I was enrolled and the potential of this new therapy, my husband and I spent 3 days with Ron and his lovely wife, Margaret. They were an exceptional host and hostess.

Another visitor from NeuroTalk had spent a few days with Ron prior to our visit.
It was our friend, Rick Everette, who lived a little over 100 miles from my home. Rick and I had good intentions of getting together, but you know what they say about good intentions . . .

Ron (aka Dr. Hutton) was brilliant! He held (among other degrees) a PhD in Chemical Engineering (I think - I'm unsure of the degree concentration). He also was a silversmith and served on an IRB at Kings College for a study on mucuna purines (see slides from a PDF Webinar)

http://www.pdf.org/pdf/Complementary..._Brandabur.pdf

You might want to find Ron's posts on his creative theory concerning the blood brain barrier (do a forum search)
Adding the link:
http://neurotalk.psychcentral.com/thread174588.html

NOTE - I don't believe his obituary has been posted online yet I will try to call his family, but there is a 5-6 hour time difference
Peg

Last edited by pegleg; 09-12-2015 at 02:06 PM. Reason: Added the link on Ron's work on the BBB theory or neuroinflammation
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Old 09-12-2015, 04:23 PM #22
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Default Ron Hutton

Ron's writings here and elsewhere were some of the first I read when newly diagnosed, an informative and encouraging beginning for my life ahead with PD. I admired him and had the pleasure of spending a day with him and Margaret in their home.

Thanks Ron for your methodical, persistent and caring contribution to the Parkinson world.

Thoughts and condolences to Margaret, their children and grandchildren.
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Old 09-14-2015, 02:04 AM #23
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I am saddened to read about the passing of Ron. I will miss his presence here. My condolences to his family. What a gentle man he was.
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Old 09-14-2015, 09:38 AM #24
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Default Obituary?

I still have not seen his obit, not can I get in touch with family. Anyone else had any luck?
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Old 09-15-2015, 12:55 PM #25
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Peg Have you tried contacting Michelle Stonely the Advisory Officer for the area on 0344 225 3737 or email isw.eastkent@parkinsons.org.uk . She may be in contact with the family and will speak to them on your behalf, or forward your details to them.

She advises me that you may also text Christine Galbraith who is

Advisory Services Officer
Parkinson’s UK
215 Vauxhall Bridge Road
London SW1V 1EJ
This is a confidential helpline at 0808 800 0303.
Calls are not free from canada or the states

tRelay number is 18001 0808 800 0303 but for textphone users only

Also you can try hello@parkinsons.org.uk

Wish I could be of more help but if you know his daughters numbers I will give it a go

Take care Thelma
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Old 09-16-2015, 09:33 PM #26
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This is very sad news. My condolences to Ron's family and friends. He touched many lives and will be greatly missed.
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Old 09-16-2015, 11:52 PM #27
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Help good things come to those who wait

Ron impressed me as being a very patient man....and I am so encouraged that he radically and successfully decreased his sinemet dose through time rather than increased it ....a detail of great import imho.

May peace and love abide in you and your loved ones Ron Hutton during this time of transition. - MD
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Old 09-17-2015, 11:14 AM #28
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Default Never met Ron "in the flesh" however

my overriding impression was that of a real gentleman, calm, dignified and treated everyone on this board with the same level of respect and attention.

His earlier post in this thread about going for the PWP record sums up the humour and dignity he displayed.

So sorry for his family.

Neil.
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Old 09-17-2015, 02:44 PM #29
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I too am saddened to hear about Ron's passing..I was a very active member of this board for quite a few years, but just pop in once in a while to read and see whats going on..I am happy that I decided to make a visit here today, but unhappy to hear the bad news about Ron..Ron fought a good fight, enjoyed his life to the fullest and never let Parkinson's get in the way..Ron was a gentleman and an inspiration to all those who knew him and his inspiration will carry on through his writings in his threads and posts..You will be missed Ron

RIP Ron, and Godspeed on your new journey
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Old 09-18-2015, 10:40 PM #30
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Default I did not know Ron Hutton personally,

yet his notable contributions to this forum and to the cause of Parkinson's Disease will live well beyond the sadness we now feel at the news of his passing. I especially appreciated the enthusiasm with which he shared the joy of his travels, as well as the frankness in describing several falls and other painful accidents resulting from his physical symptoms.

I will miss his posts, his good humor and his erudite observations.
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