[HarryM]

More witchcraft??? A closet vampire??? Who knows, but as my PD progresses it seems to worsen on bright sunny days, sometimes to 100% 0ff on LevoCarb & ALMOST total incapacity. Seems that heat & bright sun just kills me. However, come 4pm-6pm, a complete reversal. No need for meds, I feel great, get active, attitude change - all the good stuff. I get a 6-8 hr, break from the tremors (most days)

Any body else have this ?? I'm 72 (if that info helps)

[reverett123]

HarryM-

Tremor has never been a problem for me, but bright light can play hell with my sporadic bouts of dyskinesia. It is at its worst when the light is in my peripheral vision and from one side. All that I have ever read on it is a passing mention of "increased light sensitivity" which doesn't say a lot. I keep a pair of clip on sunglasses handy which I have taped to leave a single horitzontal slit that helps a lot. -Rick

Originally Posted by HarryM

More witchcraft??? A closet vampire??? Who knows, but as my PD progresses it seems to worsen on bright sunny days, sometimes to 100% 0ff on LevoCarb & ALMOST total incapacity. Seems that heat & bright sun just kills me. However, come 4pm-6pm, a complete reversal. No need for meds, I feel great, get active, attitude change - all the good stuff. I get a 6-8 hr, break from the tremors (most days)

Any body else have this ?? I'm 72 (if that info helps)

[johnt]

Harry,

I'm sorry to hear that you can't enjoy good weather.

Are you dehydrated?

Dehydration can lead to slow gastric emptying and delayed "on". This might explain why you're getting no initial benefit from your drugs and why you go "on" later with no further drugs.

John

[12stargate]

Originally Posted by HarryM

More witchcraft??? A closet vampire??? Who knows, but as my PD progresses it seems to worsen on bright sunny days, sometimes to 100% 0ff on LevoCarb & ALMOST total incapacity. Seems that heat & bright sun just kills me. However, come 4pm-6pm, a complete reversal. No need for meds, I feel great, get active, attitude change - all the good stuff. I get a 6-8 hr, break from the tremors (most days)

Any body else have this ?? I'm 72 (if that info helps)

The heat kills me!!!!

[aquario]

Originally Posted by 12stargate

The heat kills me!!!!

Sorry to hear that. Just left Salt Lake after 40 years, and saw that it's been over 90 degrees every day for the past month and a half. Ouch. If you want to get a little after-midnight cooling, might want to wander outside tonight some time between midnight and dawn. Perseid meteor shower!

[CBreeze1257]

Originally Posted by HarryM

More witchcraft??? A closet vampire??? Who knows, but as my PD progresses it seems to worsen on bright sunny days, sometimes to 100% 0ff on LevoCarb & ALMOST total incapacity. Seems that heat & bright sun just kills me. However, come 4pm-6pm, a complete reversal. No need for meds, I feel great, get active, attitude change - all the good stuff. I get a 6-8 hr, break from the tremors (most days)

Any body else have this ?? I'm 72 (if that info helps)

I have tremors also but the come on suddenly. I've had this disease for 7 years now. Lately, I have been falling. My last 2 falls I fell flat on my face because my reflexes are slow and my face hits the ground before my hands do. I hope someone else can help you.

[HarryM]

Originally Posted by CBreeze1257

I have tremors also but the come on suddenly. I've had this disease for 7 years now. Lately, I have been falling. My last 2 falls I fell flat on my face because my reflexes are slow and my face hits the ground before my hands do. I hope someone else can help you.

This is a thread I started a couple of yrs ago and it has been my salvation all this time.

Parkinson's & Prednisone

--------------------------------------------------------------------------------

Just wanted to forward my experience with Prednisone. Dr. prescribed it to combat a serious outbreak of Psoriasis as follows;

Take six 5 mgs of APO-Prednisone in am daily for 7 days.
Take four 5 mgs daily for 4 days
Take two 5 mgs daily for 3 days.

Within 6 hrs of 1st dose, I could feel an improvement generally in my well being. Between 24-30 hrs PD symptoms had diminished noticeably. At approx. 48 hrs I FELT NORMAL and estimate 90% reduction in symptoms. Only a minor twitch in my left hand remained. Gone was the slow walk, weakness, bent neck, & slow speech. My strength and attitude returned to normal and I was able to go out on my ATV and clear a 1/2 mile of bush trails that I started a yr or so ago.

Even as the doseage decreased to the 4, 5mg, pills a day the positive effects continued till the 2nd day of two pills a day and thats when the symptoms slowly started to return.

Only negative side effect was increased blood sugar levels - pretty high - but that can be treated. And for as good as I felt, I"ll take the diabetic risk. I've had diabetes for 20 yrs.

I'm going to the Dr. today to discuss the possibility of treatment with Prednisone.

I emailed my experience to every PD researcher I could find on the net.

I hope this info will be of interest to you.

HM

[NorCalGal]

Originally Posted by aquario

Sorry to hear that. Just left Salt Lake after 40 years, and saw that it's been over 90 degrees every day for the past month and a half. Ouch. If you want to get a little after-midnight cooling, might want to wander outside tonight some time between midnight and dawn. Perseid meteor shower!

I have learned that I'm fine as long as the temp is between 70-82 degrees but not so good at heat any higher until it reaches mid to upper 90's. I went to a theme park on what felt like the hottest day of the century (most likely 93-97) and didnt have any problems with dyskensia or dystonia all day!! Imagine standing in ride lines for up to 45 mins.