FAQ/Help |
Calendar |
Search |
Today's Posts |
09-03-2013, 01:09 PM | #11 | ||
|
|||
Junior Member
|
Quote:
|
||
Reply With Quote |
09-03-2013, 07:48 PM | #12 | ||
|
|||
New Member
|
Quote:
|
||
Reply With Quote |
"Thanks for this!" says: | NorCalGal (09-03-2013) |
09-06-2013, 02:55 PM | #13 | ||
|
|||
New Member
|
I had DBS for essential tremor last year. I am 52 and in good health. I was wondering something. Is it possible to have PTSD from that? I LOVE the outcome of the surgery by the way. I had to have it done twice because of violent reaction to sedation the first time, throwing up during surgery so they stopped. Three mos later I had surg again, but this time with NO sedation to put the head cage on and locals didn't work well. It was like a horror movie, AWFUL!!!! Anyway, I have little panic attacks when I think of it, heart pounding, fear. I want to run away and regret doing it. Thoughts come and go, maybe once a week. Life isn't changed by this, but it's mostly sad that this has to haunt me.
|
||
Reply With Quote |
09-08-2013, 11:28 AM | #14 | ||
|
|||
New Member
|
I had DBS last year for ET. I won't kid you, it was an awful surgery, scary, moving into the unknown, but totally worth it. Yes, few minor speech issues, but you do have control over it with the stimulator to some degree AND you can always just turn it off! I give myself credit for bravery and rescuing my quality of life! I was 50 when I had it. I wanted to be able to fix thanksgiving dinner, feed future grandchildren, hold a drink at a party. You can do it, be tough, be strong. I'm not on any meds!
|
||
Reply With Quote |
09-16-2013, 07:27 PM | #15 | |||
|
||||
Member
|
I forgot to mention, I am no longer on PD MEDS!!
I too had dystonia, particularly in my feet and ankles, and head and neck. Gone. I was walking with a cane, sometimes wheelchair bound. No more. The DBS paired with excellent gait training was a miracle for me.....best!
__________________
Kimberly M. Fowler Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game. -- Voltaire dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010 dx'ed w/TN on right side 2007. GK x4, last GK 02/2013 |
|||
Reply With Quote |
"Thanks for this!" says: | libra (09-16-2013), soccertese (09-16-2013) |
Reply |
|
|