slapdasch - I totally get your post. I'm going on 15 myself. I thought I'd be dead in 10, and some days I just lay on the couch because that's the easiest thing to do and I'm tired of pretending that if I work hard enough, my life will somehow get back to normal. But then the denial kicks in again, and I get up.

I don't think you are trying to cause trouble, you're just speaking your truth.

To Mouka,
I was diagnosed with Parkinson's disease 16 years ago, when I was 40 years old. I thought it would progress faster but I have been quite lucky. A combination of medicines and great doctors (and good health insurance to pay the doctors and pharmacies) and a good exercise program have enabled me to do much better than I originally expected. Certainly my Parkinson's disease has progressed, and i need more meds every year. But I still can walk and run well and I still ski well.

of course, i also have bad days and i need my meds to function well.

In April 2013 I produced a video titled "Can vigorous exercise slow progression of Parkinson's disease?"

Since 2010 I have been leading exercise classes for people with Parkinson's disease. Most participants have improved function. Many participants can run well. some participants have improved abilities to participate in recreational sports

I hope you can find good doctors and good exercise trainers in your area.
Try to exercise at least a little bit every day.

Good luck.

David Blatt

Thanks and you do totally get it. I'm not trying to stir things up and have acknowledged I understand the material is not to all tastes. Living with PD definitely involes a dark side and every so often, in one form or another, its probably useful to consider that aspect of the condition in the interests of "keeping things real."

The philosopher Spinoza once defined intelligence as "the extent to which you accept things as they are because they have to be the way they are."

In connecion with having PD, those words seem to apply pretty well. Perhaps a number of us can take some comfort in the idea that we are getting smarter every day.

I don't think John Ball has "standard" PD. He only suffers from dystonia. That is not PD in my humble opinion.
I wouldn't mind having dystonia. Give me back my sense of smell. Take away the dizziness. Allow me to sleep.

But you gotta keep a positive attitude. Like others my attitude is "sometimes having PD is just pretty dam annoying" We all have our bad days...mine was just this past weekend. I started trembling all over and had bad dystonia in my feet. I whispered to my boyfriend "this is bad" because I've never had tremors before. Savor the good times. Someone once said if you worry about the bad times to come when they do it's like living through them again or twice or something like that.

Is your video commercially available or freely available?

I see your Irony more along the lines of Dark Humor. More of a "Sweeney Todd"
musical than a "Candide"(French Philosopher Voltaire.) As a former "Pit" musician when we played Sweeney Todd we would hear a different take from the audience. Some nights it would be dead silent after the cast made the bows, Others, the audience would laugh. No one could tell is it was meant to be humorous.

Candide was always received with laughter as the audience saw the philosophy more clearly.

I think it depends on your audience. If you post things about symptoms we all share, it is very real to us and we do not know whether you are giving up the fight or just letting off steam. If your family and friends who know you well heard the same remarks they would accept it as Irony.

Don't worry about the reaction you have received. Keep posting so we can know you better.

Best Regards,
Dianna

Dianna - Your post reminds me of the upcoming debut of Michael J Fox's new TV series. It will be interesting to see the different reactions to a comedy about Parkinson's!!!

Carey aka indigogo
By
I am really looking forward to Michael j Fox's new television series. However, there will be some, I'm afraid, who will be offended by the mockery the show obviously makes about living with PD. Note, that I did not say that I agree with that assumption. I am just saying for us to get ready to hear the complaining, and if you so choose, get ready to defend his show.

Peggy

"Laugh at yourself and at life. Not in the spirit of derision or whining self-pity, but as a remedy, a miracle drug, that will ease your pain, cure your depression, and help you to put in perspective that seemingly terrible defeat and worry with laughter at your predicaments, thus freeing your mind to think clearly toward the solution that is certain to come. Never take yourself too seriously."
Og Mandino