Gerry would you mind giving us an update on how you are doing on the Hinz Protocol. I find it very interesting and wanted to see if your still having the same results as last year and if the supplement routine is able to be followed over a long period of time. Do you ever miss a dose and what happened. Thanks in advance

I still follow the Hinz protocol and I don’t miss doses. In over a year I still haven’t found the combination of doses that moves me into phase 3 (see the recently posted link to http://healthyselfnow.com/parkinsonstx.php for an explanation of this.) Partly this is because the doctor (DC) I work with is a sort of intermediary between Dr. Hinz and myself. He has to contact Dr. Hinz for advice and instructions so there is always a considerable wait for results and dosing changes. Dr. Hinz said this last dosage change should finally move it and the urinary dopamine in phase 1 finally dropped quite a bit so that’s good. I have another consultation today so we shall see.

In the meantime, despite this, it works great with no side effects. I am looking for the dose that stops progression and makes the doses last longer. I have to mix my powders every 3 hours from 9 to 6. That can be a hassle if you are out and about. Also eating seems to delay or prevent it from kicking in sometimes so I get to walk or eat but often not both. I am still trying to figure a way around this.

There are some interesting effects. The regimen seems to stop all motor and many non-motor symptoms when I am on (tremor, anxiety, constipation, etc.) but they return when a dose wears off. When on I am effectively normal and I can easily con myself into believing I am cured! As for how I am different in the off state from when I started. I used to have balance issues, dystonias, bradykinesia, gagging problems, and walking problems. All are now gone except for the walking problems which are worse. My legs never had rigidity, more like the power cord was unplugged. Now when the power is off it’s really off and I need a walker.

I am hoping that when I get to phase 3 that issue will be taken care of.

I still think the Hinz program is marvelous. It’s not for everyone. It is expensive, it is a hassle to use the blender or shake the suspension vigorously (I use almond milk or orange juice) every 3 hours, and it takes time to find the right balance of aminos. On the plus side it does the job without side effects.

That was very informative thanks a million! Is there a way to deal with Dr. Hinz directly?

That's good to know, and I'm glad you are doing well, Gerry.

My friend Jan's two year experience with the Hinz protocol allowed her to go off of Sinemet once the drug stopped working for her, allowed periods of regeneration and cognitive return-to-selfhood.

The Hinz test is expense as any test, so you only test when things aren't working. Then, the lag time between Hinz method of testing and dosage adjustment was frustrating; it could take up to 3 or 4 weeks after the urine sample was taken for results and a new prescription. The scene had shifted on its own by then an the point of reference, e.g. the terrain that had been tested, was different. So, we learned by trial and error to use other methods of adjusting dosage that involve neuro-muscular feedback.

While I am not advising anyone to bushwack against their doctor's orders, please know that we did this with her physician's foreknowledge and permission. Jan would use kinesiology or ART testing or MORA machine feedback to identify how much and when each daily dose should be taken, to optimize uptake and minimize dyskinesia. Remarkably, this helped traverse the 3 or 4 weeks until the lab results and new Hinz opinion came in. Often, we found convergence, same dosage directions. Just sayin'.

The above is not to imply that Hinz or other's properly trained are not essential!!! Only a life story on how tricky it is to balance neurotransmitters this way, that we felt the system is not fully developed to address immediate need for dosage adjustment and we got by as described above.

The part that didn't work is that, in Jan's two year's on the Hinz protocol, she kept seeming to need greater and greater quantities of mucuna for those desired on periods. She took so much that she revved her system up, the adrenaline part, and eventually the dyskinesa problems that drove her off Sinemet manifested and then drove her off mucuna/aminos. Had the cost of the Hinz protocol not been prohibitive and had we gained more confidence that a therapeutic balance could be achieve, Jan would have elected to remain on them. Nourishing the brain still makes sense to us.

So, is there a moral? Find additional ways to read your symptoms. Have unlimited funds to help find your way. Don't take too much of anything. Um...

Gerry, all good wishes! I laud your efforts and am glad to see you doing well. We'll keep learning from you.

Trisha

sure seems a lot cheaper, more effective and easier than the HINZ program. I was diagnosed 11years ago. after 6 years on C/L, still effective at 800mg/day with no dyskinesias. I'm alway a little undermedicated to avoid dyskinesias but when on I do very well. When i stop taking C/L around 6pm, go off around 9pm, i need a cane when off, but if i added neupro likely wouldn't have off periods.

Honestly, nothing you posted would make me want to try the HINZ protocol, seems like HINZ and his associates are making a lot of money on his tests and products, you do have to buy all the amino acids from him or his associates?

the fact that you are taking large amounts of mucana which contains L-DOPA makes me wonder why you just don't buy mucana in bulk, toast it 8 minutes at 125F and try that?

No, he only deals with doctors. I'm a pharmacist and he won't talk to me!

You might be right but years ago I experimented with
sinemet for life extension purposes and it made me throw up. I am glad you are doing well but the Hinz program makes sense for people with side effects and for the possibility of stopping progression. If either of those promises fail I will look at the L/C, agonist, enzyme juggling act I read about on this site.

Incidently, the tests are free after 8 of them and he insists on using his brand because he needs consistency for test and evaluation purposes. Thanks very much for your input.

I forgot to mention that www.neurosciencemyths.com can refer you to a practitioner.

We are all desperate for remedies. Being desperate always goes with being duped and taken advantage of.
I too would be very hesitant to embark on something as complicated as the Hinz protocol. If he would make it all in the public domain and allow anybody to have their own version of this protocol. Then it would be a different matter. These tests sound complicated and too convoluted.
Maybe there is good science behind them. But there are big bucks involved too. So I am a bit skeptical.

amen brother!