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DBS Removal

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Old 09-13-2013, 11:01 AM #1
cbrf1wr cbrf1wr is offline
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Default DBS Removal
Anyone ever had this procedure. Just curious if it has ever been done. Since DBS eliminates some/all other options and trials it would seem to me you should have the option to remove it. Assuming a better option becomes available for treatment.
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Old 09-14-2013, 09:44 PM #2
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Removal has the potential I think to be a bit too risky so I don't think there's anyone who actually had the hardware removed but again I'm just guessing
But by switching it off everyone concerned could pretend it wasn't there and participate.
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Old 09-15-2013, 10:22 PM #3
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Just wondering if it has ever been done. Theoretically it would be no more dangerous than the the initial surgery.

Main reason for asking was the policy of most trials that you cannot participate if you have DBS. I am leaning towards DBS as early as I can get it, but would like the option of removal if one of the more promising experimental treatments breaks through.
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Old 09-16-2013, 07:14 PM #4
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My understanding, from my neurosurgeon and neurologist, is that DBS CAN be removed. That is why it is a better option than thalamotomy or palidotomy as those procedures actually destroy brain tissue and are, therefore, not reversible.
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Kimberly M. Fowler

Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire

dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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