Parkinson's Disease Tulip


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Old 05-11-2007, 09:38 PM #11
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I cant take Requip because it makes me sick..I take a small dose of Mirapex..(in addition to Sinamet).. and I dont think it really does anything

I have another damn cold, and Ive been sick once and this is the second cold all in two months or so..I havent been sick for years and years, and all a sudden everytime I turn around Im either sick or have a cold

Thanks for the tip about the Amantadine cs..I have some here, and Im gonna take some tomorrow..
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Old 05-11-2007, 10:17 PM #12
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Default stevem53

This is just speculation, but your colds may be a side effect of the dextromethorphan. I know, ironic that a cough syrup might do that...

The reason I mention that is that one of the characteristics of PWP is that their immune systems are pretty good and we don't get colds, etc. The tradeoff, though, is that we are more prone to autoimmune problems.

Since we don't really know what the DM is doing, it is possible that your immune system is moving toward a normalized state of some sort. That's not necessarily a bad thing, just watch out for the flu.

How are you doing with the DM anyway? I may try it again. I found that my blood pressure problem was a dying cuff
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-11-2007, 10:21 PM #13
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Lightbulb what if -

what if we really do not have Parkinson's Disease?
what if we have been categorized poorly, by doctors that never use their brains - they read the diagnosis right out of the book -and their technology is stagnant, they never let it grow into a different category, because
they are boxed in thinkers?

what if what we all have is a certain type of toxicity and the big pharmas
are encouraging the doctors not to think, by bribing their neurons to think
in terms of greed...

I truly believe with all my heart - that our humanity needs to surpass our
bio -tech- no-logy .

Our human spirits of love are truly greater than any drug!
Mother Teresa of Calcutta was one of those humans with a Godly Spirit, people who show their humanity in humility and kindness, and actually allow -the hearts of those they want to help by wanting them to heal, show great passion -that greatest law -is to love one another

if the BIO -Tech's were more motivated by goodness instead of greed, I believe it would be the greatest gift to Humanity~

The Great Ones give -and forgive
The Spineless ones steal, and kill and make more patents...
if you do a google search on this -it will shock you,
it disgusted me!

use these words:

"big pharma , blood money"

or click this link
http://tinyurl.com/yws8my
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Old 05-11-2007, 10:26 PM #14
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Default sorry, didn't mean to get off topic

I have a strong tolerance for requip. I'm taking 28 mg per day which is 4 mg over recomended max but there is a lot of fudge factor there. Some have taken close to 50 mg per day with no problem.

I can't say that I like it though. I also take 700 mg sinemet and I say a little prayer for my liver each night.

Question- has anyone had any experience in switching from one agonist to another? Any improvement? What about mixing them?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-11-2007, 10:29 PM #15
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Default ctenalouise raises a good question

and one which deserves its own thread which I will start
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 05-11-2007, 11:06 PM #16
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Default switching agonists

I was started on Permax, and the first teeny tiny dose nearly did me in - I was up at night after and nearly passed out and was literally seeing stars in the dark room. And then the awful nausea started, and went on and on and on. It would occasionally get a little better, but was never great. I finally over-rode my MDS and got my family dr. to switch me to Mirapex. That was after discovering this site, and becoming educated.

Mirapex gives me slight swelling in my ankles, and my nose is a wee bit runny, but other than that, no problems that I know of. I keep thinking that maybe it doesn't do much for me, but with trying to keep up with work, I haven't tried cutting back yet.

As an aside, Steve, you often mention that you might be under-medicated. I was ready to stop work and go on disability. My MDS suggested another dose a day of Sinemet 25/100 - now I"m on four - and it has made a huge difference. I'm enjoying work, feel like I'm doing a decent job, and won't have to consider disability for a good while yet, I hope. I'm just hoping that the info on fish oils slowing down dyskinesia is true!
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Old 05-12-2007, 12:10 AM #17
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Quote:
Originally Posted by reverett123 View Post
This is just speculation, but your colds may be a side effect of the dextromethorphan. I know, ironic that a cough syrup might do that...

The reason I mention that is that one of the characteristics of PWP is that their immune systems are pretty good and we don't get colds, etc. The tradeoff, though, is that we are more prone to autoimmune problems.

Since we don't really know what the DM is doing, it is possible that your immune system is moving toward a normalized state of some sort. That's not necessarily a bad thing, just watch out for the flu.

How are you doing with the DM anyway? I may try it again. I found that my blood pressure problem was a dying cuff

Ive been wondering the same thing..

I have been very busy and pushing myself way too much between fishing and yard work..Because of that I havent been feeling the symptomatic reprieve that I was experiencing..Having said that..Maybe I would be far worse without the DM..I really dont know..I havent taken a day off and just hung around to re-group in weeks, and Im paying a big price..I dont have the stamina I had a year ago..Also Ive gotten in the habit of napping on the couch in the afternoon instead of the bed, and its not the way to go
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Old 05-12-2007, 09:45 AM #18
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Well, I guess I better get my experiences with agonist in here. In the beginning I was given Requip. Not wanting to use Sinemet until I had too. For the first couple of days the Requip did a fair job of controlling my symptoms. On the third day, my wife could not get me awake for work. When I did finally rouse around of course it was time for my next dose of Requip. Within 20 minutes I was out cold. Not wanting to panic we decided to take a few days and record exactly what was happening. What dosage, what time, and affects.
At this time I was seeing an MDS at the Cleveland Clinic. I faxed him the information we had recorded. He told me to continue on as prescribed. These problems would go away as my body became used to the drug. I fought through it for another six weeks. Nothing had changed. I took the pill and went to sleep within about a half hour. The MDS decided to stop the Requip and start Mirapex. At that time he told me that if the Mirapex did the same thing we would stop it immediately. As it was time for my medication while we were in his office, I took a Mirapex. With in a half hour I was asleep. Needless to say we walked out of the Cleveland Clinic that day with Sinemet.
I think the biggest lesson here is that if the prescribed drugs are not working for you, let your doctor know. I went back on several occasions to be tested to find out why I had such unusual reactions from both Requip and Mirapex. To my knowledge, they never found a cause.
It comes down to we are all different and the medication doesn’t work the same for all of us.

GregD
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