Do most of the members agree with you on this? Sure would be comforting to know. I've been taking for about a month I think and I have had no real problems
from the side effects. Thanks to you I may sleep tonight.
The main problem is the doctor said,"Take these" and never said anything about side effects!

Some drs are just like that,

It's always a good idea to learn about any new med, but even though side effects are mentioned they may or may not occur for you, but you will have the knowledge of what to watch for, just in case.

Is Chorea movement reversible?
Besides I already decided to stick with the meds. The darn pain in my legs during the night leaves me no choice.

But the quality of my life has already improved since I got the disease. Before in order to have a great time I had to go to Disney World or on a cruise. Now all it takes is to be out of pain and I'm having a great time!

you'll have a ton of questions about pd as time goes on and the first thing i did after diagnosis, after getting a 2nd opinion, was buy a reference book on parkinson's written by a pd expert, one can't always depend on message boards and medical professionals to be perfect all the time. same with any chronic disease, knowledge is power. a lot of good info and a lot of bad info can be found on health message boards, i certainly would double/triple check anything posted on any board.

i suggest THE PARKINSON'S DISEASE TREATMENT BOOK by AHLSKOG or the following:
http://www.amazon.com/Parkinsons-Tre...+parkinson%27s

the involuntary movements stop quickly, you stop the C/L and they stop.
they are a function of advanced pd and spikes in C/L concentration, healthy test subjects given C/L don't get those movements.

Hey. I'm starting to feel good about this. I feel like I just joined some kind of elite group!

Well to tell you the truth about me, I was a medical laboratory scientist and sometimes that can work against me. In my case the less I know about it might be better than more lol. So I've been staying away from medical info as much as possible. I was diagnosed just about a month now and it took me about 5 or 6 hours to get used to the fact that I have PD. My philosophy is when I wake up in the morning I just go on living. I just deal with the aches and pains and forget about the dx. It's been one month and I haven't studied PD at all. So I decide I might take a peak at the medication and Bingo... I get burned. I start imagining going to the grocery store making all kinds of weird facial expressions with everyone looking at me like I'm from a different planet and start questioning me about whether or not I'm documented or illegal.

Anyway.. one thing that really puzzles me is that in my case all my symptoms are in my legs. They are supers stiff in the morning. They get so weak that I can't make it from one side of the house to the other. Sometimes they ache so bad that I lay down on the bed and I can't lay down because it is too painful.Then I stand up to ease the pain and then that hurts and then I try to lay down again. When I get like that its like torture. I'm a pretty tough guy when it comes to pain but when I can't lay down or stand I feel like a 10 year old kid who wants to call his mom for some sort of comfort.

Here is the mysterious part. I have no tremors at all. I have extremely fine dexterity.Coordination used to be a lot better but its not bad at all.

Did anyone ever hear of a case of PD that involves the legs only with zero tremors on their entire body?

It is hard to know where to begin. Yes, this site has traditionally been a refuge for the "elite" including at one time a certain Canadian actor starting a new show this week. And there have been a LOT of good people pass through. Some moved on. Some disappeared. Some died. Some still lurk in the shadows. Some have just arrived. Hey! That's you!

First, forget the willful ignorance approach. It s dangerous. Your doc's know very little about PD. You have to know more. You have to be your own advocate. And, if you have a background in research, you have an obligation to this community to use it as we work to work out the puzzle. Hint- the dopamine is just the beginning. Maybe ten percent.)

You have an obligation to yourself, too. These are critical years for you. There are opportunities that wont ever come again. And decisions that you will be living with decades frm now.

There is a ton of info in the archives. Learn to use the search function.

Welcome aboard.

Oh, about those legs- some possibilities include (in no particular order) wheat gluten, B vitamins, electrolytes, muscle atrophy.

Everyone has their own threshold about how much PD info they can absorb at once, esp. when first diagnosed. Still, find out what resources are available and keep yourself informed so you know enough to ask when you need help or when/if your therapy isn't working for you. *admin edit* Good luck!

The first and only time I had tremors was when I went to my regular dr. I said "let me show you this" I took off my shirt then extended my arms to slip it back over my head. There was a pronounced tremor in my left arm and I was quickly referred to Neurology. Up until that day I was just "a nervous silly woman" with carple tunnel, phantom aches and pains in my limbs, numbness and tingling in my hands, cramps in my feet, I was "depressed", "anxious" yada, yada, yada. The neuro dr diagnosed me with moderately advanced PD. I was 48 yrs. old. I was put on C/L and Requip immediately. The few weeks were trial and error getting the dose right...one side effect had me doing "squats" ( I HAD to stand up and sit down repeatedly???) 1/2 hour to an hour before the next dose was due. I'm very diligent about taking orders from authority figures but not very pro active when it comes finding solutions on my own(for a lack of a better way to say it). After just a couple of years I developed dyskensia (sometimes I just laugh about it, other times its preet freaking annoying!!) and am now looking at DBS surgery. Everyones symptoms and side effects are different...When first dx'ed I met a guy who took 1 pill a day, whereas I was taking 8-10 (If I had a trane of thought it just left the station and I'm not aboard Welcome to PD) Be proactive when you can otherwise just roll with it.

Well I have learned one big lesson that I might share with a new PD person. Don't ever read the side effects of C/L. I'm diagnosed a month now and I was doing great coping. Then when I read about the involuntary face and body movements, I got devastated. I think I only cried twice in the last 15 years. This
morning was one of them. These involuntary face movements has done a real number on me.
Listen to this.
1 Last night I get wacked with the news about the movement.
2 I was in so much pain last night that I barely
3 As it is I suffer from Bi Polar and now I got the emotional stuff from the medicine
4 Read 1.
I think today is one of the worst days in my whole life. Has to be up there in the top 20 all time worst days and I'm 57

Am I allowed to say that I'm really really depressed today.

I really need you guys.. When I get my act together... I have to be there to help out someone else.
Hey I just thought of a real positive thing. I'm not in a lot of pain right now. That's reason to celebrate!

Soccertese is a wise, (albeit sometimes grouchy) longtime member of this board. I would take his information and advice very seriously.