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12-18-2013, 12:58 PM | #1 | ||
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Now that the book is available, both through the Parkinson's Creative Collective website http://www.parkinsonscreativecollective.org and Amazon, we need help spreading the word. Would those of you savvy in the ways of marketing please help with suggestions or actions?
It's definitely under the tree for my loved ones. |
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12-18-2013, 03:38 PM | #2 | ||
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Magnate
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WOW!
this is a massive book, over 2lbs? please tell me there isn't a quiz after i finish reading it? everyone with pd will find something in this book that will more than justify buying it. kudos to the authors and editors, it's beautifully illustrated, very easy to read, lots of interesting stories and biographies, an incredible amount of work must have gone into this book by people with pd. it's "everything you wanted to know about pd but were afraid to ask" TIMES 10. armed with this book you can better deal with healthcare providers, family members, coworkers, and have a better quality of life. and the best resource i've seen if you need the motivation to get involved in the "cause", an incredible amount of info on pd groups, individuals and examples on how to get involved which is more important than ever imho. |
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"Thanks for this!" says: | Lemonlime (01-09-2014), Nan Cyclist (12-18-2013), pegleg (01-04-2014), Stand Tall (12-20-2013), Tupelo3 (12-18-2013) |
12-18-2013, 04:06 PM | #3 | ||
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I know I'm repeating myself from the other thread, but for this book its worth it.
Wow, what a great way to spend a snowy weekend. Fireplace going, relaxing in my favorite chair, and reading a wonderful book written and edited by some incredibly talented PwP. Thank you so much for writing what will eventually become the "bible" for every newly diagnosed PD patient. The individual stories that go along with each detailed PD topic bring a prespective to this disease that probably has never been previously accomplished with any illness. Originally, I thought this was going to be a book written by PwP for PwP. However, after finishing it, I realized this book should be mandatory reading for every person associated with Parkinson's; patients, caregivers, family, doctors, therapists, etc. Congratulations!! I'm honored to have a little bit of contact on this forum with some of the people involved in this fantastic accomplishment! Gary Last edited by Tupelo3; 12-18-2013 at 04:35 PM. |
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"Thanks for this!" says: | Lemonlime (01-09-2014), Nan Cyclist (12-18-2013), pegleg (12-19-2013), soccertese (12-18-2013), Stand Tall (12-20-2013) |
12-23-2013, 01:19 AM | #4 | |||
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A single click on the Like button will 'like' pieces of content on the web and share them on Facebook. You can also display a Share button next to the Like button to let people add a personal message and customize who they share with. Just Google Social Plugins and you'll see there are quite a few of them. Your web site creator I'd say could make this happen. |
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02-18-2014, 04:43 PM | #5 | ||
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I'm almost finished reading it. It led me to this website. It's really hard to read - very sad, but also empowering. I've summarized some parts and shared it with our North County Parkinsons support groups, especially the parts about gentle exercises. We're still struggling with the new life of living with PD disabilities. This book helps a lot, keeping things in perspective. There is a real world outside of the doctor's office, and we're trying to include as much as is reasonably comfortable in our lives. When I'm done reading the book, I will try to write about some of the many things I'm learning about how to maximize your lifestyle while your body says, "No."
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01-03-2014, 02:09 PM | #6 | ||
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I did see it on Amazon for $27 with free (prime) shipping - a good deal. We should encourage people to write an Amazon review (you don't have to have bought the book from them) - so far there's only one review from "Dr. T" |
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01-06-2014, 08:16 AM | #7 | ||
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https://www.michaeljfox.org/foundati...es-pd-resource
MJFF did a blog piece to promote the book it last month. I will look into mentioning it on our facebook page. Debi Happy New Year! |
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"Thanks for this!" says: | Lemonlime (01-09-2014), lindylanka (01-06-2014), Nan Cyclist (01-06-2014), pegleg (01-06-2014), reverett123 (01-06-2014), Stand Tall (01-06-2014) |
01-06-2014, 09:36 AM | #8 | ||
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