Parkinson's Disease Tulip


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Old 01-03-2014, 02:09 PM #11
MeAndPD MeAndPD is offline
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Originally Posted by Nan Cyclist View Post
Now that the book is available, both through the Parkinson's Creative Collective website http://www.parkinsonscreativecollective.org and Amazon, we need help spreading the word. Would those of you savvy in the ways of marketing please help with suggestions or actions?

It's definitely under the tree for my loved ones.
So I just ordered the book from your website. I spent 30+ years in sales/marketing for a major computer company so would be happy to help market the book!

I did see it on Amazon for $27 with free (prime) shipping - a good deal. We should encourage people to write an Amazon review (you don't have to have bought the book from them) - so far there's only one review from "Dr. T"
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Old 01-06-2014, 08:16 AM #12
Debi Brooks Debi Brooks is offline
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Default promotion

https://www.michaeljfox.org/foundati...es-pd-resource

MJFF did a blog piece to promote the book it last month. I will look into mentioning it on our facebook page.

Debi

Happy New Year!
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Old 01-06-2014, 09:36 AM #13
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Originally Posted by Debi Brooks View Post
https://www.michaeljfox.org/foundati...es-pd-resource

MJFF did a blog piece to promote the book it last month. I will look into mentioning it on our facebook page.

Debi

Happy New Year!
Just ordered my book!
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Old 01-09-2014, 02:28 PM #14
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Default Newbie doc/PwP

I'm a newbie to this forum. I saw the book at a workshop two days ago and just ordered it.

I have had PD for nearly 3 years and take no medication. Most of my symptoms disappeared after I started an intense program of running, weight lifting and yoga. I have created a website about "Sweating Out Parkinson's Disease. I intend to record podcasts on a regular basis. I hope my work will complement what I see here.

I am a retired physician, board certified in Psychiatry by the American Board of Psychiatry and Neurology. I'm happy to be here and hope to make a positive contribution.
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Old 01-09-2014, 09:57 PM #15
Nan Cyclist Nan Cyclist is offline
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Chris, welcome to NeuroTalk. I think you might be interested in the stories on the thread about Pedaling for Parkinson's. I had a similar experience to yours when I started high cadence cycling in 2009. Although I did not stop taking medicine, I was able to reduce my dosage by half and get rid of Azilect as well. Although I have recently had to increase my medication a little bit, I am still well below expectations for my age and duration of the disease. By the way, neat webpage. Did you make it yourself?

Last edited by Nan Cyclist; 01-09-2014 at 09:58 PM. Reason: typos
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Old 01-10-2014, 08:02 AM #16
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Welcome Chris!

I just received my book a few days ago. You will not be disappointed, it is an amazing collection of PD information.


Jill
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Old 01-11-2014, 01:43 PM #17
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I ordered my book last night. :-)
I read the preview on the website and thought it was amazing! Can't wait
to receive the book! Thank you in advance for all of the hard work that
went into this book!!!
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Old 02-17-2014, 11:47 PM #18
Nan Cyclist Nan Cyclist is offline
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If you have read a copy of this book, would you please take a few minutes and go to the Amazon website to write a review. It doesn't need to be long, just heartfelt. Thanks ever so much.
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Old 02-18-2014, 11:45 AM #19
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Default Please!

Ditto to what Nan said. Nan and I can't write a review since we are either on the board of directors or wrote some of the book. So we would appreciate your help.

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Old 02-18-2014, 04:43 PM #20
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Default Peripatetic Pursuit of PD

I'm almost finished reading it. It led me to this website. It's really hard to read - very sad, but also empowering. I've summarized some parts and shared it with our North County Parkinsons support groups, especially the parts about gentle exercises. We're still struggling with the new life of living with PD disabilities. This book helps a lot, keeping things in perspective. There is a real world outside of the doctor's office, and we're trying to include as much as is reasonably comfortable in our lives. When I'm done reading the book, I will try to write about some of the many things I'm learning about how to maximize your lifestyle while your body says, "No."
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