Parkinson's Disease Tulip


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Old 10-09-2013, 01:33 PM #1
linktrek linktrek is offline
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Default Good days bad days

I asked this question before but I want to make sure. I was just diagnosed and i'm set up with another Dr for a second opinion. My symptoms are all in my leg. I have leg weakness,stiffness,and pain. But each day is different. I stopped taking all meds and my symptoms vary from day to day in severity and in pain and stiffness. I have days that I can barely walk and others that I am about 90% functioning. Do symptoms vary in PD? Are there good days and bad days? Perhaps not as dramatic as mine.
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Old 10-09-2013, 01:52 PM #2
lurkingforacure lurkingforacure is offline
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Originally Posted by linktrek View Post
I asked this question before but I want to make sure. I was just diagnosed and i'm set up with another Dr for a second opinion. My symptoms are all in my leg. I have leg weakness,stiffness,and pain. But each day is different. I stopped taking all meds and my symptoms vary from day to day in severity and in pain and stiffness. I have days that I can barely walk and others that I am about 90% functioning. Do symptoms vary in PD? Are there good days and bad days? Perhaps not as dramatic as mine.
Yes, PD changes from day to day and even hour to hour, it can really fluctuate and usually the fluctuation is centered on the medication coming into effect or wearing off...but I am curious about what you said on stopping all meds? What meds were you taking, and why did you stop them?

There must be more symptoms than just leg weakness/stiffness/pain, because that alone will not support a PD dx....that almost sounds more like a sciatica issue but I'm not doctor.

Be sure you are being looked at by someone who knows what they are doing....just because someone is a neuro means very little in the world of PD. Better to be seen by a movement disorder specialist, because PD is more a dx of exclusion, after other things are ruled out. I think it's been posted several times here that the misdiagnosis rate for PD is rather high, I've read anywhere from 25-35%, so be sure your doc knows what he/she is doing.
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Old 10-09-2013, 02:24 PM #3
linktrek linktrek is offline
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The Dr that Dx'd me with PD put me on CL and when I fired him I went of it. I felt no definitive affect from the CL. I was experiencing fatigue and would lose energy in the middle of the day. This seems of disappeared. To tell you the truth I sort of stopped keeping track of my symptoms as a coping mechanism. I ignore my negative thoughts to cope with the fear of having the disease. Along with that, I stopped paying attention to my symptoms as I have adopted a "living day by day" attitude. My main most consistent symptom right now is leg weakness which varies from severe meaning I am limited to taking very small steps where I can barley walk to walking at about 70% strength on average.
My muscle pain has been sever enough to cut through 20mg of hydrocodone but this hasn't happened of about three weeks now.
One morning when my legs were really weak and I could barely walk, I had tremors that originated from my knee that made my left foot shake. But that only happened one time.
But there may be one thing that may be happening too. I may be getting used to my symptoms now that I haven't been normal since May of this year.
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Old 10-09-2013, 07:09 PM #4
lurkingforacure lurkingforacure is offline
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Default you may be very early or not even have it...

Quote:
Originally Posted by linktrek View Post
The Dr that Dx'd me with PD put me on CL and when I fired him I went of it. I felt no definitive affect from the CL. I was experiencing fatigue and would lose energy in the middle of the day. This seems of disappeared. To tell you the truth I sort of stopped keeping track of my symptoms as a coping mechanism. I ignore my negative thoughts to cope with the fear of having the disease. Along with that, I stopped paying attention to my symptoms as I have adopted a "living day by day" attitude. My main most consistent symptom right now is leg weakness which varies from severe meaning I am limited to taking very small steps where I can barley walk to walking at about 70% strength on average.
My muscle pain has been sever enough to cut through 20mg of hydrocodone but this hasn't happened of about three weeks now.
One morning when my legs were really weak and I could barely walk, I had tremors that originated from my knee that made my left foot shake. But that only happened one time.
But there may be one thing that may be happening too. I may be getting used to my symptoms now that I haven't been normal since May of this year.
I'm not a doctor, but I haven't heard the symptoms you describe as belonging to anyone having PD. Dragging a foot, yes, fatigue, yes, tremors (resting tremor), yes, even rigidity. I would definitely get a 2nd or even 3rd opinion from a PD specialist or movement disorder specialist. Let us know what they say.
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