I had been meaning to follow up with you on the Metatone. I did look it up and it is mainly a strong mix of electrolytes. Like a strong "sports" drink. That is interesting because I haven't run across anyone doing serious experimentation with that.

I do recall, however, Ron Hutton posting about a Parkie who had taken an antibiotic that had knocked out his PD symptoms for the duration of treatment. It was simply penicillin BUT they had added potassium to it. Potassium, of course, is one of the primary electrolytes. You may have stumbled (PD joke!) onto something.

In addition to giving you such energy, how does it seem to affect your other symptoms?

I have been taking Q10 for about 18 months at the urging of my neurologist. She said to take the max of 1200 mg but I only took 400 mg up until this Jan. when she again told me to take 1200 mg. So now I take 800 mg. It's a big expense at these amounts. I've been buying my Q10 and a few other supplements from Puritain's Pride which, I believe, have good prices. I can't say Q10 does anything for me. Since starting Sinemet about 30 months ago which "fixed" my tremor, I manage very well except for poor sleep. I have also been taking low dose naltrexone (4.5 mg) for about 34 months. I don't seem to have progressed much or at all but it's hard to tell as time goes by. Do either of these two drugs (Q1 or LDN) work? Maybe, they are both out of pocket expenses but worth it for now. At least with LDN and now dextromethorphan, there have been lab studies at the NIH led by Dr. Hong (see PubMeb) that show that PD can be simulated in rodents to show dopamine cell loss. They believe dopamine cell loss is caused by activated microglial neuroinflamation. They also show that low levels of naloxone (ldn) and DM can protect dopamine cells and significantly slow progression.
From what I've read about Q10, we all seem to have decreased amounts as we age. So I guess it helps to take it but at what amount? In the German study, it seems they didn't go far enough and also include a group that would take 1200 mg alongside the 300 mg and control group. At what amount is it pointless and maybe harmful to take too much Q10? If the blood levels showed a leveling of Q10 at a certain dose, does it make sense to take extreme amounts above that?
Ashley

Thanks to Cyclelops and Reverett for your input re: CO-Q-10...and Steffi...not only for your input about COQ-10 and Metatone, but also for a good laugh when you described "how" you take the Metatone...SWIG, SWIG, huh?? Now we can call you "STEFF THE SWIGGER...OR, PERHAPS EVEN STEFF THE SWINGER!!!! From what I've read of your "posts", "swinger" seems apropos!!! Thanks, again.

Therese

remember reading that coq10 must be taken with a fat for absorbability--the reason the original study reported by Drs. Shults and Beal utilized a compound of coq10 with vitamin E (manufactured by vitaline formulary). Tishcon is reputed to be another manufacturer of coq10 that is readily absorbable. friend who is a pharmacist told us that Sam's coq10 is "pretty absorbable".
Problem with too much coq10--with excess, theoretically it may become a pro-oxidant (though have been told by a neurologist that excess coq10 just becomes a sugar in the body). Alpha lipoic acid re-cycles coq10 in experimental conditions--it is not clear whether this happens in physiological conditions--husband does take alpha lipoic acid

Thanks for your reply...and I am glad to have raised a smile.I am writing this reply with a chuckle as I have never been called a Swinger before...and I am not certain where you are from [which country] but here in the UK a Swinger is a term given to folk who purposefully swap partners at parties and well....disappear for extra marital "fun."

This is sooooooooooooo funny.
Therese...I do believe I could "swing" from a chandelier after my dose of metatone but believe me...That is the ONLY swinging I`ll be doing.LOLOL
I think if any guy saw me at a party waving my car keys [cos I do believe that is how some of these parties operate...you all throw your keys in a tub and then dip in..and whoevers keys you draw..well..there you go]if a guy saw me wobbling his way he would run a bloody mile!
Lurch from the Munsters has nothing on me when I`m off my meds.

Oh Therese..thank you so much for the return giggle.
Bless you
xxx

Reverett...I have today,bought a buster size bottle of Metatone.And yes...still downing it in my own style.I feel fabulous on it. I daresay that these days,my fatigue comes more from emotional strain rather than physical.I am active for most of the day and I ,MEAN PHYSICALLY ACTIVE...cutting hedges in dykes...walking the dogs,mowing an acre of lawn...digging....very little holds me back at the minute...so although I still have on/off periods..the "on"times are REAL QUALITY. I am as bright as a button.


x

"if a guy saw me wobbling his way he would run a bloody mile! " Especially if you had that Metatone gleam in your eye! That would make a great commercial, wouldn't it??

But back to our topic I suppose.

I know you freely make use of the Metatone, but think a minute. How much is in a bottle and how many days does a bottle last for you?

This really is interesting in that the electrolytes are central to cell function.

Steff...so glad to have given you a giggle/chuckle just as you gave me. Now, as for "swinger"....hmmmm...I just may have "put my foot in it" with that term. I think your definition of that term takes it just a "step further" than what I intended when I used it...you know...just someone who really enjoys a good time and enjoys providing a good time for others. I think I'm getting in "deeper" with my explanation...so...just take it that I mean you're a "good time"...good fun person. How's that for an attempt to "get out of hot water!!! ...and all this evolving from your explanation to me that you SWIG Metatone!!!!! LOL Thanks for the laughs, Steff...the "best medicine".

Therese...first of all...BIG HUG and I agree..Laughter is the best medicine so assuming that I`ve given you a good dose of laughter..and you`ve given me one...maybe we should bottle and market ourselves !!!!
However...in my case I would need a warning in huge great letters;
IT IS DANGEROUS TO EXCEED THE STATED DOSAGE.
Reverett.The bottle I have just bought is 500ml.
The CORRECT dosage is one to two 5ml spoonfuls two or three times a day.

So I figure on MY dosages..the bottle will last me about a day and a half
"No? "
Ok/...I`ll try to be sensible.I am intrigued too about these electro thingies.Can you put it into language that someone like me can understand ....really simple so I can get the hang of what these electro thingies do.
I promise to take the correct dose from NOW so that I can give useful feedback to you if that`s what is needed.
Thanks for your interest.

From
THE SWINGER

Oh, ha ha, Steff..."maybe we should bottle and market ourselves...and your "caution"...IT IS DANGEROUS TO EXCEED THE STATED DOSAGE!" Maybe we could market our product under the name "SWIGS FOR SWINGERS"...Of course, I'm not too sure whether or not I should be included in that title since our definitions of "swinger" seems a tad different! Oh, nevermind...I'll "allow" myself to be included. Please believe me...I'm not always this silly...just when someone else is and I seem to "catch" it!LOL Actually, I am usually quite serious...too serious most of the time. I think that's the reason, though, that I'm enjoying our "exchanges".
On the more serious side, now...was it not you who told me that you would pursue the name of the provider of the CoQ-10 that your pharmacist recommended? If it was NOT you, then please find out anyway!!! LOL

Take care, Steff
Therese

Can this be the same tonic I used to be given as a child (1950s)? A vile tasting red liquid which used to stain the cup in which it was given. I was told it was full of iron as I was pasty-faced & thought to be anaemic. Has some company just bought the name & changed the composition? Or is this the same Metatone?
I'm still here & apart from PD reasonably OK physically - so maybe it did some good. The taste & smell are with me still: bad luck those who have to take it!! I just hope it works for you.