[Jlc_05]

Hi everyone,

I am a 29 year old male from Canada and am experiencing many parkinson's symptoms: acting out dreams, internal and postural tremors, throat problems, constipation, cramping of hands and feet, painful muscle contractions, shoulder pain, neck pain, leg pain, lower back pain, sebbhoratic (spelling) dermatitis, increased sweating, depression, anxiety, unbelievable fatigue, no sex drive at all, rigidity (noted by doctor) in arms, and I'm sure the list goes on. Some of these symptoms have been occurring for 5 years.

Anyways, my neurologist has done many tests to rule out all other conditions and has told me she believes this is somatization. I think this is ridiculous and asked for a referral to an mds, she refused. I have a follow up with her in 2 weeks. This is where you guys come in. Do you have any advice for me?

One other question I have is that, if you were 29, would you have high hopes that there will be either a cure, or great treatment in my lifetime?

Thanks so much guys, this forum is such a great resource.

James

[vlhperry]

Please read Laura's thread. It might be helpful to you. The thread is asking what is Parkinson's disease.

Vicky

[Jlc_05]

Hi Vicky,

Thanks for the response and for welcoming me. I am having a hard time locating the thread you mentioned. Is it titled "what is parkinson's disease"?

Thanks,

James

[soccertese]

i suggest you pay privately for a 2nd opinion.

imho your're acting a little irrationally, you have to work within the medical system, your neuro isn't going to be swayed by anything posted here.

good luck.

[Jlc_05]

Hi soccertese,

Thanks for the response. Unfortunately, paying for a private consultation in Canada is not an option. Everything here is based off of referrals. To see another neurologist, either my current neurologist or my gp would have to refer me.

I guess I was just wondering if anyone here has gone through this same situation and, if so, how it was eventually resolved.

Is it worth asking for a mds referral again, or should I just wait until the tremor and rigidity worsen and the re-visit the general neurologist? We only have one mds in my area and, although he comes highly regarded, the wait time to see him is 8 months.

The pain and fatigue are very much affecting my quality of life, this is the only reason I am trying to rush a diagnosis.

Thanks again, everyone.

I'm open to anyone and everyone's opinions at this point.

[soccertese]

can you travel to the U.S. or another country?
you are basically saying your MDS is misdiagnosing you. i visited a MDS thinking i had a pinched nerve and got diagnosed with pd based on slightly dragging my right foot and some muscle rigidity. got a 2nd opinion and the MDS said she could tell i had pd from my face. everyone who knew me couldn't believe i had pd including my GP - my symptoms were that minor.

You listed almost every symptom of PD and your MDS didn't give you a diagnosis.
Have you purchased a book on pd and highlighted your symptoms and presented it to your GP? Have you contacted your local parkinson's support group for advice?