Parkinson's Disease Tulip


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Old 11-18-2013, 03:38 PM #1
Bob Dawson Bob Dawson is offline
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Bob Dawson Bob Dawson is offline
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Default As it was, as it is, as it was meant to be (in 3 parts)

As it was, as it is, as it was meant to be (in 3 parts)

This video was way back then:

http://youtu.be/Yj8YjivWSgA

This video is now:

http://youtu.be/qhWmz3sAZoA

This video is timeless:

http://youtu.be/2BsS8uOZ4H8

We could never get lost.
It was trees in all directions.
No matter which way we went.
I was surrounded by Beauty.
But that wasn’t enough:
I wanted to bring you magic.
I wanted to take away the pain.
But I was not a maker of miracles
I was just another snowman
melting in the rain.
It was very kind of you to say
that the melting snowman
was magic too.
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Stand Tall (11-20-2013), Tupelo3 (11-18-2013)

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Old 11-18-2013, 07:53 PM #2
johnt johnt is offline
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johnt johnt is offline
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Bob,

First, put "Sunshine of your love" up high. If you can, dance. If you can't dance, dance in a chair or even in bed.

Second, tally your levodopa (I can't follow it on your video) and check with your GP as to whether this is optimal.

Third, play everything on YouTube on "Transatlantic Sessions".

John
__________________
Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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Rob (11-19-2013)
Old 11-19-2013, 05:00 AM #3
Bob Dawson Bob Dawson is offline
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Bob Dawson Bob Dawson is offline
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Quote:
Originally Posted by johnt View Post
Bob,

First, put "Sunshine of your love" up high. If you can, dance. If you can't dance, dance in a chair or even in bed.

John
Thanks for your concern, John, but that is what I was preaching for years. It does good, and then your time of dancing is over, and it takes a new wave of personal acceptance to deal with it. And so a new generation of commentators takes over, a generation of PD being about 5 years.
And like Reverett123 wondered on these pages, could things have been different if during those years, the research energy had left some room for things other than Pharma's Biggest Hits?
The first video above is me preaching dance (since 2004); the second is why I don't get out much anymore, and the third is just to accept the beauty and the grief.
I now can sleep 20 hours a day, and spend the other 4 calling people to say Good Night. (Not literally true, but close enough. It's your world now; hold the torch high)
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