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11-30-2013, 04:42 AM | #11 | |||
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In Remembrance
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Have you considered Low Dose Naltrexone?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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11-30-2013, 05:26 AM | #12 | |||
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Member
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Did you take medication for nausea each day and did you increase your dose very slowly? I haven't tried Mirapex but have been on Ropinerole for 5years. It took some months for me to slowly work up to the right dose. I think agonists are tough meds to get used to but i find Ropinerole helpful particularly relieving stiffness and making movement easier. I haven't heard from my Parkinson friends that they find one agonist is any better than another. I do have friends who have been on Ropinerole and have found it difficult to get off the drug and I have read about the Dopamine Agonist Withdrawal Syndrome but only in the context of withdrawing after long term agonist use. Last edited by dilmar; 11-30-2013 at 05:34 AM. Reason: Clarity |
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"Thanks for this!" says: | soccertese (11-30-2013) |
11-30-2013, 10:15 AM | #13 | ||
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Senior Member
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Head to head pramipexole V ropinirole: recollection loss.
Unfortunately behind a pay wall, but in the Abstract Shepherd et al. write [1]: "Recognition memory (RM), familiarity, and recollection were examined in 21 patients with mild-to-moderate PD ... Patients were subdivided into two subgroups according to dopamine agonist (pramipexole [PPX] or ropinirole [RPR]), and completed matched versions of an RM test in a medicated and unmedicated condition ,.. Ten demographically matched healthy volunteers (HVs) also completed both RM tasks in two separate sessions. The PD group (PPX and RPR subgroups combined) showed impairments in RM and recollection, but spared familiarity. When subdivided by dopamine agonist, the PPX subgroup's ON-medication recollection performance was significantly lower than that of both the HVs and RPR subgroup. There was no evidence of decline in OFF-medication recollection or familiarity in either the PPX or RPR subgroups." Note the small sample size, but the good news: some of the memory loss shown by PwP is likely to be due to the medication, rather than the disease itself. Reference [1] "Second-generation dopamine agonists and recollection impairments in Parkinson's disease" Thomas A. Shepherd, Nicola M. J. Edelsty, Andrew R. Mayes, Simon J. Ellis Journal of Neuropsychology, 7.2, Sept, 2013 http://onlinelibrary.wiley.com/doi/1...12025/abstract John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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12-01-2013, 12:32 PM | #14 | ||
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Junior Member
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Thanks for the comments...I have Alskog's book, and it is great but he doesnt say much about the multitude of Mirapex side effects - e.g I suddently got so many new 'floaters' in my visual field it scared me. I also am on Patients Like Me, and found their compiled stats on Mirapex, and thought I had a good chance of doing well on it. I appreciate the Soccertese comment about 'silent' people doing well who do not post on this or other sites, so the info. may be skewed, but I forget that when I am reading comments, so thanks for reminding me. SB
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"Thanks for this!" says: | Bogusia (12-03-2013) |
12-01-2013, 12:52 PM | #15 | |||
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Wisest Elder Ever
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This is an FDA site... reports serious enough to go to that agency.
http://www.drugcite.com/?q=mirapex keep in mind that not many make it this far, as doctors hesitate to report.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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12-01-2013, 01:59 PM | #16 | ||
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Magnate
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