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12-08-2013, 01:05 AM | #1 | ||
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Ethical implications of the remote measurement of PD
It seems to me likely that computer systems can be built that in some sense remotely measure a person's Parkinson's. By "remotely" I mean they work from a distance, without a person having to do anything and, possibly, without the knowledge and consent of the people being observed. Such a system could use photographic, video, audio, keyboard or other data to give a person a Parkinson's score. Once up and running, the rate at which data could be collected would be breathtaking. Thousands of people could me measured in minutes. For example, 50,000 people at a football match could be photographed; thousands of people passing through airport security could be videoed; millions of web sites could be trawled; tens of millions of telephone calls could be monitored. Measurement offers great clinical and research benefits: - It could lead to earlier diagnosis, which in turn would help to identify the etiology of PD; - It could give detailed measures of progression rates, which might lead to the identification of treatments to slow progression. - It could assess the symptomatic effect of treatments and identify which ones are most effective. However, it raises ethical issues. For instance: - What impact would it have on a person to out of the blue to be told they had a 50% chance of developing PD? - Suppose you telephone an insurance company to arrange medical insurance and as you speak they analyse your voice print and find you have a 10% chance of developing Parkinson's in the next year. Could you still get insurance? What would happen to the premium? Should work continue in this area? I have no answers, just questions. What do other people think? John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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