Rick,

It's great that you're using PDMeasure, not so great that there's been a problem. Whatever the cause it's in one way or another my fault. We'll get it working.

The good news is that you registered OK, and did Survey 1 OK.

The next step is to do Test 1, the side to side tap test. I've just done that on my account and it works fine.

This suggests the instructions were not clear or, less likely, that your process timed out before saving, or less likely still, that the server went down.

So, I'd be grateful if you tried again. You will have been automatically logged off by now, so please:
Sign In
Run Test 1
Do the tap test - you should see left and right hand scores.
Press Submit
Finally, you can see if everything has worked by pressing View Data and scrolling to the end. Your scores should be visible.

If that doesn't work, I'd suspect a portability problem. So, if things are still not working, please let me know your operating system (e.g. Windows 7) and browser (e.g. IE7).

Looking forward, you will want to extract the data for each of your projects. This is much easier to do if you tag the entries. You can do this in one of two ways. For short term trials enter your tag of choice in the Extra Information field of Test 1. For long term trials you can put a tag in the others field of the medications survey.

Just out of interest, the latest usage figures for PDMeasure are:
Survey 1: 108 (of whom 90 have IPD, 3 have other Parkinson's, 2 other illness, 13 are healthy);
Test 1: 521
Survey medications: 56

John

john-

Do you happen to rely on javascript? I block it but normally have an over ride option but not this time. Will try again over the weekend. -rick

It has now been 10 days since I started taking DMX again..During the past 5 days I have had a couple of tough bouts with dysiknesia, but the thing that has changed is the amount of time it lasts..It only goes on for 10 or 15 minutes, as opposed to 3/4 to 1 hour

Yesterday morning I had it for about 2 minutes..Last night as I began to go off I had none..This morning I had a few twitches in my right leg and I was on

I have been taking it shortly after my morning meds, and about an hour or so before I usually go off..I have been taking a very small amount..Just a tad more than enough to coat the bottom of that little cup that comes with the cough syrup is what I've been taking

The sweating has been minimal..The freezing has returned, but it is not as bad as it was..I would say it has improved by 25 - 30%$

Rick
 

Is this the thread you are looking for?

Yes, indeed, that is the one.
 

Thanks, Steve. I will probably never know where it went but I am glad that it came back. :)

This DXM is some of the strangest stuff that I have ever messed with. I have spent the last week using a mix of one part syrup with one part water and then taking a single drop of the resulting solution. And that has been too much, at least for me. A lot of positives- greatly improved sleep; almost zero cramping; legs feeling stronger; etc. And at least one big negative in the form of a strange hangover the next day. It takes me the better part of the day to get over what I had taken the night before. It seems like an hour on followed by an hour off.

<Lets pause just a moment and synchronize our watches. I am taking the single drop of the dilute about 10:00 PM or so. That is all within the 24 hour period. >

Last night I made up a new batch using nine parts water and one part syrup. I took a single drop about 11:00 PM and went to bed about mid-night. Some DK at first but went to sleep without much trouble. Awakened by rain 6:00 AM. Was wobbly and yearned to go back to bed but was able to force myself to function for a half-hour first. Slept soundly until 9:00 AM and began this dance.

I am going to follow my own advice and take a day or two off and try an even greater dilution.
-Rick

I am not getting the benefits I was getting during the first two weeks, but I had a few days where I had no dyskinesia whatsoever..I had a couple of bad days, but I was dyskinetic for about 5 minutes this morning, and about the same last night..I am not freezing as much as I was, and walking has improved when I am off..I am definately doing better than I was

This is the NEW and IMPROVED dextromethorphan thread
 

OK fellow rats, rodents, and related species-

This brings this part of our journey to its end. I will try to stay focussed and keep this together. This thread is for discussion of dextromethorphan in the treatment/management of PD in both macro and micro contexts. This also includes methylene blue in the micro-environment, turmeric and any other thing that functions in this way. Now to bring us up to date-


Quote:
Originally Posted by reverett123 View Post
I have done a little more experimenting and I am not certain that I am going further with it or not. Frankly, it is a little scary with othing to go on. But I will add what I have to the heap.

If you remember, I was following a hunch related to the extremely low concentrations reported in the earlier work. I set up a rather crude eperiment as follows:
a) I placed a single drop of DXM into a beaker and added 10 oz of water. I called this "Solution One";

b) I then placed one drop of Solution One into a beaker and added 10 of water to create "Solution Two";

c) Placed one drop of Solution Two into beaker and added 10 oz ofwater to create "Solution Three";

d) I repeated the procedure until I had created "Solution Six".

e) My first test had been of Sol One by taking a single drop on my tongue at bedtime. The result was stronger than expected and a little frightening. A general depressing of the CNS particularly respiratory function. It was alarming enough that I slept upright in bed that night lest I aspirate any vomit.

f) I tried again with Sol Four and still was uncomfortable.

g) It was only with Sol Six that I felt within a workable range.

So there you have it. May well be the most important thing in Western Medicine since moldy bread and we are the only ones who know.

It has parallels to Bruce Ames's work with methylene blue I think, the LDN, reported "step" effects of turmeric, and maybe others.

To the rest of you, unless you are really experienced with this kind of thing , I would suggest extreme caution. At a minimum start with a level of "Solution Ten" and have someone to keep an eye on you. Sit upright the first time too. Aspirating vomitus is a particularly undignified way to go.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.

Steve how you?
 

Steve-
So now that we are past the holidays, how are you doing? PM me if you want.

-Rickb