I'll try anything...............how do we get it if our doctor won't prescribe it?

Mary

My husband has been on LDN for over 2 years now for his PD. When he first started LDN at the 4.5 mg dose, he was able to reduce from 2 caridopa/ levidopa down to one a day with no loss of function (along with one 5mg of selegeline). There has been no problem with taking LDN along with these medications.

However, earlier this year, he did a trial with the new PD drug rasageline (which meant he had to get off his selegeline first). However, he did not find that the rasageline was doing the job so after 6 weeks quit taking it and went back to the selegeline. During that time period however, he had declined somewhat and now has to take 2 to 3 carbidopa / levidopa a day instead of the one he was taking prior to the rasageline. I did read on some forum AFTERwards, that LDN and rasageline may not be compatible to take together.

So while he has been on LDN, we have not seen noticeable progression, except for this time period when on the rasegeline.