NeuroTalk Support Groups - DBS Scheduled: Ask me anything!

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- - DBS Scheduled: Ask me anything! (https://www.neurotalk.org/parkinson-s-disease/199223-dbs-scheduled.html)

General anaesthesia

Apparently you can now have the surgery while under general anaesthesia. Did you have that option?

http://www.digitaljournal.com/pr/1671327

My balance is worse than before surgery. The doctor said it is probably just the body reacting to surgery and will get better on it's own. It has gotten better but I am off balance at night still. I hope it does eventually go away.
You are right, dbs is not supposed to help with balance.

Quote:

Originally Posted by libra (Post 1042394)

How are you doing? I agree, the halo was the most frightening part for me also.
I couldn't believe I was actually doing it. I think I went into auto control just to make it thru.
It took about 4 weeks before my balance got better. I must've fallen once a day. Now I am in the middle of the programming. I am on 1 volt and have cut out my carbo levadopa. My dyskinesia and tremors are almost gone.

I hope things are going well with you. It will get better.

On Thursday, approximately three weeks post operative, I developed at DVT in the left leg that spawned two PEs that migrated to my lungs. So, I have been inpatient for six days getting a therapeutic level of Heparin. It felt like I was breathing for five people. Another day, I'd be dead...

Being a recent brain surgery person, the docs did not want to dissolve the clots using TPA as they were afraid of hemorrhage.

Sooo, still sitting here getting adjusted to oral Heparin while still getting the IV stuff that saved my life.

Good news is that I have enjoyed a prolonged honeymoon period that keeps me optimistic!
:)

Sorry to read of your complication

Hope you heal soon. Keep flapping your feet back and forth while in bed. madelyn

DBS bilateral STN

Well I had bilateral STN three months ago. Now my balance is much better, bradykinesia is gone and tremors on both sides are also gone. Any medication containing dopamine belongs to the past. The most painful and frightening part of the procedure was when the headframe was placed. I would say it is worth going through the procedure. The quality of life has improved considerably. You have to give at least a month to the programming team to increase the voltage gradually and decrease the medication. Good luck.

Quote:

Originally Posted by cesar (Post 1045634)

Agree! The head frame was a bit scary but not so I would have chosen NOT to undergo the procedure.

First programming and I already feel better. Tremors are gone.