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01-28-2014, 03:33 PM | #11 | |||
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This article is about someone with caeliac disease and Parkinson's. From my reading both conditions can have symptoms in common. Without seeing the article we don't know which PD symptoms improved, were they ones that are also caeliac disease symptoms?
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"Thanks for this!" says: | badboy99 (01-29-2014) |
01-29-2014, 11:07 AM | #12 | ||
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I agree with the above statement...
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01-29-2014, 12:22 PM | #13 | |||
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A friend of mine's daughter gets severe mental problems resembling a bipolar condition from gluten. She is generally all right when she is able to avoid gluten in her diet but sometimes she accidentally gets some. There is a probiotic called HMF Neuro that supposedly breaks down the exorphins formed in the gut before they can get absorbed so she is now trying it.
I intend to try some myself as another experiment to see if it affects PD. I read that MJF went to Bhutan and his symptoms ameliorated. There was some speculation that it was the lack of gluten in the diet there that might have provided the benefit.
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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01-30-2014, 08:43 AM | #14 | |||
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I gave up eating bread daily but still enjoy it on occassion - in fact at one point felt mmy body was needing b vitamins and other nutrients from this stable food -it was the extra tire round my belly (and fast reduction or increase in)that was the proof to me that digesting it was difficult -don't know if this is a crediible soource but nonetheless interestiing-
http://www.greenmedinfo.com/blog/glu...frontal-cortex
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01-30-2014, 03:10 PM | #15 | ||
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I believe I started to really notice a difference after about 3 months, and yes I still feel better. Less anxiety, better mood, better sleep. There is no way to know for sure if it's helping my PD, but I did feel more comfortable in my body, less rigid. I figure it's just one less potential problem for my body. I didn't experience any withdrawal... I just had about 3 months of an adjustment period, where I had to learn how to eat - find out which foods contain gluten, be sure to always ask at restaurants. A real turning point came for me at Christmas that year. I remember looking at all the food that I DIDN'T eat, watching everyone eat baguettes and cheese and cakes - and I just imagined the pile of food that I would have normally eaten and I had a mind-shift - suddenly it all looked disgusting to me. I haven't missed it since. If I have a craving I will eat a gluten free bread or cookie, but I mostly keep my diet at veggies, meats, fruits and rice. It's an easy experiment to try, inexpensive and safe! |
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01-31-2014, 05:27 AM | #16 | ||
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interesting that Coeliac and B12 deficiency are often linked. The commonality with PD is Braak. Also overgrowth of yeast infection and h. pyelori. et.c
Such things are rarely looked at together. Neuros rarely see people with PA/B12def and don't recognised it. Coeliac is rarely looked at by neuros though it can cause some crossover symptoms. Gastric imbalances get referred to a gastro specialist, and cognitive problems are rarely traced to them. One day I think this will become clear. All of these conditions give physical/cognitve/mental often devastating issues. Theres a few other things too. No one looks at long term infection. Yet I know of two people with neuro types diseases, one had typhus antibodies, the other now being treat for tapeworm, after 18 YEARS of decline. Medicine doesn't know everything, it ignores half of what it knows, and it doesn't always ask the right questions. |
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"Thanks for this!" says: | Aunt Bean (02-10-2014), dilmar (02-10-2014), johnt (01-31-2014), moondaughter (02-02-2014), wxxu (01-31-2014) |
02-08-2014, 11:38 AM | #17 | |||
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Some more info from GreenMedInfo.
http://www.greenmedinfo.com/blog/dra...uten-free-diet The neuroscientists look like they have all jumped on the alpha-synuclein misfolding bandwagon as the cause of our malady. Would this gentleman show this in his brain despite being caused by gluten? On autopsy do ALL pwp's exhibit this pathology regardless of cause?
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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"Thanks for this!" says: | wxxu (02-09-2014) |
02-10-2014, 12:29 AM | #18 | ||
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Thanks for bringing this article to us. I have been trying this now; it does not need doctor's Rx and won't do any harm but health benefits, more or less... I will see what happen after a year. Also there is a Wellness Report from Dr. Blaylock with an excellent collection of info on gluten and neurological disorders - http://w3.newsmax.com/newsletters/bl...in1113_113.pdf |
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"Thanks for this!" says: | GerryW (02-10-2014) |
02-10-2014, 08:16 AM | #19 | ||
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Magnate
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cuz if not then everything else posted here is imho poorly documented.
everyone is different and it seems that people are ignoring the fact that the mediteranean diet is tauted to have many health benefits and includes whole grains. the italians eat a lot of pasta, made from durum wheat. plus there are many parts of china and india where breads and noodles are a staple, is there above average occurrences of neurological diseases? easy to look for simple explanations for complex problems, seems a lot of people have decided that gluten is the problem and then look for any anecdotal evidence supporting that theory, ignoring anything that says it isn't a widespread problem. perlmutter would have more credibility to me if he actually applied for grants and published some research rather than just made money on his clinic and book. |
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"Thanks for this!" says: | dilmar (02-10-2014) |
02-10-2014, 09:09 AM | #20 | |||
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In Remembrance
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....I stand by what I have said. *Something* associated with wheat kicks my PD symptoms into overdrive to the point of incapcitation and it takes about a week for me to recover. Over the last three years or so I have deliberately exposed myself in this manner because, at first, I found this to be a bit unbelievable myself. But I eventually had to admit that it was real.
Any one can try this for themselves and "stress test" their own vulnerability. Simply avoid all exposure to wheat in any form for a few days. This is difficult because its use is so widespread. If circumstances permit I would suggest that you try to stay home and eat only simple unprocessed food for as long as possible. Then, when you can't stand it any longer, go on a carbo binge. Monitor your body's response, especially the PD symptoms. Keep notes and try to genetrate numbers where you can. This is not the type of testing that would normally be used and "stress testing" is an appropriate label. Once it sinks in that you have been putting yourself through this type of stress it becomes a bit alarming to think about. You are intentionally risking the further loss of neurons to prove the point to yourself. There are a number of possible explanations - all speculative. Is there something different about the wheat itself? Has modern life caused changes in our reactions? Farming methods? Permeability of membranes in the gut? Circulatory system? Brain? Do the leaky membranes result in partially digested amino acids slipping past the protective barriers and thus confuse our autoimmune response? Just how much is that slice of Wonder Bread costing us? These are all legitimate questions that have not been answered. Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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