i don't know what your're trying to accomplish.
personally, i don't feel worse eating wheat products. it might interfere with levodopa absorption. i rarely buy bread or wheat products simply because i have no will power,, will scarf down a loaf of really good bread in a day or two.


try the opposite, load up on gluten
http://www.thekitchn.com/vital-wheat...at-is-it-84612

Reverett are you suggesting gluten free for everyone or everyone with PD or just some people may be affected?

This article makes a case for a non celiac gluten sensitivity in some people, seems like 6%.
http://www.ncbi.nlm.nih.gov/pmc/arti...6/#!po=1.92308

Ain't suggesting nothing to nobody. We are all grownups who have rational tendencies. And what I did suggest is almost the opposite of going gluten free. The latter is the avoidance of gluten in hopes of seeing improvement while the other is deliberately trying to poison yourself to see if something is harming you. It is the tactic of desperate people who are running out of time. If twenty try and all feel like crap for a week, I don't care what anyone else thinks - I learned something.

This is not new info that I am putting out here. There is a rather large forum on this very site that has been covering this for a long time. Neurological symptoms associated with gluten sensitivities are not new. Neurologists have been ignoringf them for years.

So, settle the issue once and for all. Try to purposely kill yourself with baked goods. What a way to go! Strangle yourself with spaghetti! Pummel me with a very crisp baguette!

But you know what's really weird? Joking around like that had a certain emotional charge that went along with each name. Despite three years having gone by I still miss the stuff! That comes periously close to a "Jones" and neurotoxins at very low doses. Remember the blue green algae fad a few years ago? It wasn't faked and it wasn't placebo. No, the particular species of algae makes a tiny bit of cyanide as a garnish.

http://www.bakeryandsnacks.com/Ingre...lxG9iNKg%3D%3D

this showed up in my email today. just throwing out some facts and opinions. main point it seems like going gluten free easier said then done.

Gotta love that URL!

The point is being missed here. The gluten, in some people like you and me, causes an inflammatory response. This opens the pore sizes in the membranes that line the blood vessels and GI system and brain and god knows what all. This, in turn, lets partially digested food leak into the areas defended by our immune systems. This leads to identification of "self" as "non-self" and attacks that lead to further inflammation. etc etc

Go to http://www.greenmedinfo.com/search/gmi/gluten and look over the evidence.

your're welcome to your opinion, but the phrase "you and me" is jumping to conclusions.

"Such things are rarely looked at together. Neuros rarely see people with PA/B12def and don't recognised it. Coeliac is rarely looked at by neuros though it can cause some crossover symptoms. Gastric imbalances get referred to a gastro specialist, and cognitive problems are rarely traced "

Agree totally. Medical practice is so compartmentalised.
I have gone gluten free since diagnosis 3 months ago. I have had gluten intolerance for years and it lead to leaky gut syndrome and low B12 levels. I recently started on high doses of B12 along with coconut oil. Have experienced big improvement in all aspects of my PD symptoms since doing this.

There IS coeliac disease, and there are people who go undiagnosed. So gluten IS a problem - for some. If we didn't have huge swathes of undiagnosed or wrongly diagnosed people, trawling the internet for answers to their health issues, and a sort of establishment knee jerk reaction of disbelief when other things are mentioned, or a diagnosis was questioned, then we would have a heck of a lot more clarity.

I am all for hard science, but when you come down to it, that is not what we get. As some already know I am B12 deficient and rapidly going down hill under the standard protocols, now awaiting things that will hopefully help. There is no guarantee they will though, I quite literally have to suck it and see (v. hi-dosage sublinguals for those who might be interested). This with the nod and wink from my practice pharmacist, but no documentation.

I had hoped to do this within my health system, so if I ever am at it's mercy I won't be subject to it's apparently willfull blind spots. After doing some really heavy research I find that all the scientific evidence out there points exactly to the kind of damage I am sustaining! Furthermore that evidence is contained in textbooks journals and studies by the international experts in their field, ones that have been peer-reviewed. This is what is happening to many thousands of people who are looking at why what they are prescribed in not helping them. It applies to all sorts of conditions.

Alongside of that theres a list of conditions that are being re-classified, its growing longer, and the list is headed with words like psychological, functional, etc.

There is highly unlikely to be one answer to the cause of PD, everything points to many causes one condition. (This is not unusual. In fact scientists know this possibility exists.) So some people may find improvement from gluten-free, and if Braak is credible, then something is doing the damage. Some of the agents implicated, are implicated in many other conditions too. I don't believe that gluten is one of my own problems, but coeliac exists,and causes other conditions, so I'm willing to have an open mind on it.

I knew a coeliac kid very well way back when one of my kids was in school. His mother was undiagnosed till he was. He didn't have a full complement of baby teeth, or adult ones either. No dentist would say absence of teeth = coeliac, but clearly in his case it did. TBH until the mum was found to have coeliac herself she was being investigated for neglect. Theres a long trail of weird and shocking treatment that goes back quite a way, as I found when I researched megaloblastic madness, something that can only be controlled by treatment of an organic cause.

Science is not an absolute, and most scientists know it. That is why they use terms like theory and hypothesis, and would rather call a medication a treatment rather than a cure.

I've got a favourite saying; Patients hold many of the answers, and a lot of the time science is just not looking or listening. If you want to be a white rat, thats ok too.

This is so good for you! Can you give the example(s) of those "big improvement"? Thanks!

So have you looked into the possibility that you have a condition other than PD? Or that you may have parkinsonism that is mediated by the other things you mention. Many people with B12 def are found to have considerable gastric overgrowth of one kind or another. I think what I am saying is that parkinsons signs and symptoms are exactly that a collection of things you are experiencing, that a name has been put to. Even medical sources agree with that, they know they do not have all the answers. But they also know that PD when doing its worst is something to be reckoned with. Glad you are finding relief, keep on asking the questions. Looking for answers is part of this journey.