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01-26-2014, 10:57 PM | #1 | ||
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Can anyone view this article on January's Journal of Neurology? Seems something interesting but no access...
http://link.springer.com/article/10....415-014-7245-7 January 2014 Dramatic improvement of parkinsonian symptoms after gluten-free diet introduction in a patient with silent celiac disease Vincenzo Di Lazzaro, Fioravante Capone, Giovanni Cammarota, Daniela Di Giuda, Federico Ranieri |
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01-26-2014, 11:06 PM | #2 | ||
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I am unable to view the article. My 2 cents - I've had PD for 5 years and I have been off of gluten (and dairy) for 3 years and I believe it's what has kept me off of meds this long. I feel so much better off of gluten.... everything improved - my sleep, my digestion, my mood. I'll never eat gluten again!
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01-27-2014, 01:05 AM | #3 | ||
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01-27-2014, 08:44 AM | #4 | ||
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Magnate
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i stopped eating dairy/cheese or wheat bread probably 3 years ago, mainly because i have no will power and will eat too much of either if i buy it.
since sinemet is my primary drug it is affected by my protein intake, dairy and legumes seem to reduce sinemet's affect more than wheat. a low protein diet with sinemet improves the affect of sinemet in some people. if this article involved just 1 person what does it really mean? anyone can test going gluten free on their own, can't they? that means no wheat pasta, wheat products -no wheat/rye bread, cookies cakes, , no licorice and checking every food label. |
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01-27-2014, 11:11 AM | #5 | ||
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Senior Member
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Cannot read the article to see what it is really saying. Are they saying that gluten in this case is causative of PD like symptoms?
In which case if it were a common issue then giving up gluten would be curative for some. If they are not saying that I would be interested to know whether it is thought to be anything more than something for the one-off box. |
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"Thanks for this!" says: | dilmar (02-10-2014) |
01-27-2014, 01:46 PM | #6 | |||
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In Remembrance
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I have been off gluten for about three years now. If I weaken and have a biscuit...or a donut....or pasta...or PIZZA!!!!...my PD symptoms increase in a major way within an hour and it takes a week to recover. The scary part is that, having repeated this test a half-dozen times, there is a real sense of having lost some ground more or less permanently each time.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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01-30-2014, 03:10 PM | #7 | ||
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I believe I started to really notice a difference after about 3 months, and yes I still feel better. Less anxiety, better mood, better sleep. There is no way to know for sure if it's helping my PD, but I did feel more comfortable in my body, less rigid. I figure it's just one less potential problem for my body. I didn't experience any withdrawal... I just had about 3 months of an adjustment period, where I had to learn how to eat - find out which foods contain gluten, be sure to always ask at restaurants. A real turning point came for me at Christmas that year. I remember looking at all the food that I DIDN'T eat, watching everyone eat baguettes and cheese and cakes - and I just imagined the pile of food that I would have normally eaten and I had a mind-shift - suddenly it all looked disgusting to me. I haven't missed it since. If I have a craving I will eat a gluten free bread or cookie, but I mostly keep my diet at veggies, meats, fruits and rice. It's an easy experiment to try, inexpensive and safe! |
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01-31-2014, 05:27 AM | #8 | ||
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Senior Member
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interesting that Coeliac and B12 deficiency are often linked. The commonality with PD is Braak. Also overgrowth of yeast infection and h. pyelori. et.c
Such things are rarely looked at together. Neuros rarely see people with PA/B12def and don't recognised it. Coeliac is rarely looked at by neuros though it can cause some crossover symptoms. Gastric imbalances get referred to a gastro specialist, and cognitive problems are rarely traced to them. One day I think this will become clear. All of these conditions give physical/cognitve/mental often devastating issues. Theres a few other things too. No one looks at long term infection. Yet I know of two people with neuro types diseases, one had typhus antibodies, the other now being treat for tapeworm, after 18 YEARS of decline. Medicine doesn't know everything, it ignores half of what it knows, and it doesn't always ask the right questions. |
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"Thanks for this!" says: | Aunt Bean (02-10-2014), dilmar (02-10-2014), johnt (01-31-2014), moondaughter (02-02-2014), wxxu (01-31-2014) |
02-08-2014, 11:38 AM | #9 | |||
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Some more info from GreenMedInfo.
http://www.greenmedinfo.com/blog/dra...uten-free-diet The neuroscientists look like they have all jumped on the alpha-synuclein misfolding bandwagon as the cause of our malady. Would this gentleman show this in his brain despite being caused by gluten? On autopsy do ALL pwp's exhibit this pathology regardless of cause?
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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"Thanks for this!" says: | wxxu (02-09-2014) |
02-16-2014, 05:46 AM | #10 | ||
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Newly Joined
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"Such things are rarely looked at together. Neuros rarely see people with PA/B12def and don't recognised it. Coeliac is rarely looked at by neuros though it can cause some crossover symptoms. Gastric imbalances get referred to a gastro specialist, and cognitive problems are rarely traced "
Agree totally. Medical practice is so compartmentalised. I have gone gluten free since diagnosis 3 months ago. I have had gluten intolerance for years and it lead to leaky gut syndrome and low B12 levels. I recently started on high doses of B12 along with coconut oil. Have experienced big improvement in all aspects of my PD symptoms since doing this. |
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