I suspect I have PD

Bob Dawson · 01-29-2014, 03:43 PM

[QUOTE=OlliePop
I'm not sure the direction to go. I didn't like my neurologist. I live in Alaska so the choices are limited. ... Quote

All things Parkie in Alaska appear sooner or later in Peter Dunlap-Shohl's
Alaska Parkinson's Rag:

[url]http://offandonakpdrag.blogspot.com/[/url]

As he says himself, Beyond the "Experimental" Phase Into the "Confirmed Whacko" phase.

soccertese · 01-29-2014, 06:21 PM

Quote:

Originally Posted by OlliePop

Thanks for the replies.

Insurance is good. Our LTD policy is good. I guess that I am mentally prepared for a diagnosis but in terms of my employment I have the potential to immediately lose full employment with a diagnosis. That scares me.

I also still have my doubts and stemming mainly from a positive effects from taking a Tramadol.

I'm not sure the direction to go. I didn't like my neurologist. I live in Alaska so the choices are limited.

I just found out a colleague had a diagnosis and he remains employed. Apparently if it's mild enough I'm still ok.

Soccer - Taking MP would allow me to hide it but admittedly this doesn't seem like a good plan. I need some closure as to what the hell this is.

Thanks all, sometimes I just need to see my thoughts in print to see how good or bad they are...

if yiou want to try to hide pd pay your pd medical bills privately. i doubt mucana will be adequate to hide your symptoms 5 days a week, taking it every 2-3 hrs at work would be tough and there are side affects, you need the best treatment you can find if you need to work and that might be mirapex or requip, not sinemet.

find another neuro but to be honest they have to be competent, not likeable and there is a shortage, you need them, they don't need you. so knowledge is key with pd, you are quite ignorant about pd, i suggest you order the book i recommended and study up.

lindylanka · 01-31-2014, 05:39 AM

Quote:

Originally Posted by OlliePop

I need some closure as to what the hell this is.

Diagnosis of PD is not a fine art. Medicine is getting there, and there are scans for those who have deficiency of dopamine stemming from the Substantia Nigra. But here could be deficiency from other places, and there are conditions that look like PD, parkinsonisms, and several others. If you do not have the classic signs diagnosis could take years. Closure ain't what many of us get.

If you are doing ok and your symptoms are not troubling you get on with your life, do the things you want to do. And more if you can, exercise and live.

Waiting for a PD diagnosis could be like a small death if you don't. Oh and go easy on the meds. Less is more. Really.

ol'cs · 02-02-2014, 01:18 AM

Bulking up on every type of insurance you can get, BEFORE YOU SAY ANOTHER WORD TO ANYONE ABOUT YOUR SYMPTOMS, cause if an insurance company gets the news via your doctor, then you will be considered uninsurable cause of "pre-existing conditions".l

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