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03-17-2014, 07:33 PM | #1 | ||
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I'm 48 years old, and I've had PD-like symptoms for 3-4 years now, with PD diagnosed a year ago by DaTscan. However, I have many symptoms that seem very odd and not likely to be part of PD, in my neurologist's opinion. So I thought I would "ask around", so to speak, to see if others have had similar symptoms, and whether they were told these were PD-related. I've never been in a car accident, never had any injury or head trauma, no concussion. All MRIs are normal.
My only two symptoms that are "classic" PD are: - Loss of sense of smell 8-10 years ago - Loss of left arm swing 3 years ago The questionable symptoms are the following: - Left hand/arm tremor that is not pill-rolling, but rather is biceps/forearm/fingers - tremors is both at rest some of the time and action when holding papers or holding my hands/arms out in from of me - e.g. while talking - Left leg drags/scuffs when I run or walk and doesn't come forward as it should, with left knee hyperextending for no good reason - Left toes wanting to cramp when I walk or run (haven't cramped yet, but they definitely would like to one day) - Cervical dystonia, causing voice problems - helped somewhat by periodic Botox injections - Orofacial dystonia, with left side of face hardly moving (masking??) but right side of face grimacing significantly whenever I talk - some people see this and think I've had a stroke, which I have not - results in asymmetric smile/face - Tourette's/tic disorder since I was about 13 years old (Tourette's = too much dopamine; PD = not enough dopamine - go figure that I could now have both at the same time...) - Eyes close when they shouldn't at times, remaining closed for several seconds before I can open them again - helped by periodic Botox injections - Upgoing big toe (not sure if this is a positive Babinski?) - Slightly decreased palate elevation - Hyperreflexia, especially on left - Clonus in left foot/ankle, recently diagnosed - apparently ties in with the hyperreflexia as spasticity - Rapid bowel transit, resulting in weight loss without trying - started about 2-3 years ago That's a long list, I know - I just wanted to see if anyone saw any clues in any of this or similarities to their own issues. I do have two MDS neurologists I see, so I'm not trying to play too much doctor on my own, but they're actually as perplexed as I am. Thanks for any thoughts. |
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03-18-2014, 03:54 AM | #2 | |||
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Hello TrudiN
I looked for these symptoms at the European Parkinsons Disease site and here are some links so you can decide whether your symptoms are described here. I have connected symptoms to what I think are relevant pages. TREMOR Left hand/arm tremor that is not pill-rolling, but rather is biceps/forearm/fingers - tremors is both at rest some of the time and action when holding papers or holding my hands Left hand/arm tremor that is not pill-rolling, but rather is biceps/forearm/fingers - tremors is both at rest /arms out in from of me - e.g. while talking http://www.epda.eu.com/en/parkinsons...or-parkinsons/ Quote: About 70% of people with Parkinson’s have tremor when first diagnosed, with rest tremor and action tremor being equally common. DYSTONIA / CRAMPS Left toes wanting to cramp when I walk or run (haven't cramped yet, but they definitely would like to one day Cervical dystonia, causing voice problems - helped somewhat by periodic Botox injections Orofacial dystonia, with left side of face hardly moving (masking??) but right side of face grimacing significantly whenever I talk - some people see this and think I've had a stroke, which I have not - results in asymmetric smile/face Eyes close when they shouldn't at times, remaining closed for several seconds before I can open them again - helped by periodic Botox injections Upgoing big toe (not sure if this is a positive Babinski?) Clonus in left foot/ankle, recently diagnosed - apparently ties in with the hyperreflexia as spasticity http://www.epda.eu.com/en/parkinsons...toms/dystonia/ BOWELS As to your Rapid bowel transit, resulting in weight loss without trying - I dont know how your rapid transit time was tested but I do know that many people experience sphincter control problems and urgency sometimes just bladder and others both bladder and bowel. http://www.epda.eu.com/en/research-p...relatdisord-3/ I do recognize many of these symptoms in myself or others.
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03-18-2014, 10:55 AM | #3 | ||
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I don't have time at the moment for a long post - but just wanted to let you know that I have many of these symptoms as well. I too had a positive DaT scan and a PD diagnosis. I'm 44 years old and was diagnosed at 38.
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