Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 05-20-2014, 10:42 AM #1
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Default TMS or DIY?

While not the same,we are looking at doing TMS which is very pricey and not covered by insurance....or I came across this guy's stuff which seems like it may, kinda, do the same thing but on the body v. the brain:

http://drpawluk.com/products/

Has anyone used one of his products (or heard anything about them?) His products are expensive too, but not nearly as much as the TMS sessions (have to go 20 consecutive times, at a minimum!). Share if you have any experience with any of this, thanks!
lurkingforacure is offline   Reply With QuoteReply With Quote

advertisement
Old 05-20-2014, 09:02 PM #2
rainbow676 rainbow676 is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
rainbow676 rainbow676 is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
Default

Quote:
Originally Posted by lurkingforacure View Post
While not the same,we are looking at doing TMS which is very pricey and not covered by insurance....or I came across this guy's stuff which seems like it may, kinda, do the same thing but on the body v. the brain:

http://drpawluk.com/products/

Has anyone used one of his products (or heard anything about them?) His products are expensive too, but not nearly as much as the TMS sessions (have to go 20 consecutive times, at a minimum!). Share if you have any experience with any of this, thanks!
Hi lurkingforacure,

My mom and I had a consult with this doctor to ask if he could help with PD. He had successfully treated one patient with PD with a very expensive machine that is only used in-office (unless, I guess, someone could afford the $20k to purchase one). The patient apparently had some benefit but was unable to keep returning for the sessions, so purchased a less intense (and less expensive) machine for home use. The doctor said that he thought that the patient had maintained his improvement by using the machine at home, but he wasn't certain, because the patient hadn't remained in touch.

He recommended a machine for my mom, but it was over $1000 so we didn't go for it. Seemed like too much trial and error.

May I ask what clinic will do TMS for PD? I have had a hard time locating one. I think we'd be more comfortable with a clinic setting (if it were affordable), because doing it at home seems like a lot of guesswork.

Best wishes to you.
__________________
Looking for different options for my mom, born 1946 and dX with PD in 2010.
rainbow676 is offline   Reply With QuoteReply With Quote
Old 05-21-2014, 06:36 AM #3
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Default none in US that I know of

Quote:
Originally Posted by rainbow676 View Post
Hi lurkingforacure,

My mom and I had a consult with this doctor to ask if he could help with PD. He had successfully treated one patient with PD with a very expensive machine that is only used in-office (unless, I guess, someone could afford the $20k to purchase one). The patient apparently had some benefit but was unable to keep returning for the sessions, so purchased a less intense (and less expensive) machine for home use. The doctor said that he thought that the patient had maintained his improvement by using the machine at home, but he wasn't certain, because the patient hadn't remained in touch.

He recommended a machine for my mom, but it was over $1000 so we didn't go for it. Seemed like too much trial and error.

May I ask what clinic will do TMS for PD? I have had a hard time locating one. I think we'd be more comfortable with a clinic setting (if it were affordable), because doing it at home seems like a lot of guesswork.

Best wishes to you.
I just found out yesterday that no one in the US will do TMS for PD....they will, however, treat PWP for depression with TMS. However, the coil that goes on the head for depression is NOT the same coil used with PD, so unless you have depression, and apparently pretty severe depression at that, you can't get TMS help

Kicker: TMS is actually approved for PD in the EU. They have the coil pieces for both depression and PD (and other indications as well). In the US, it would be considered an off-label treatment, and again, no one I know of has the coil to treat PD with TMS.

I have a call in to a center in San Diego that uses TMS for autism (off label), hoping they have the same coil that is used in Europe for PD, but haven't heard back from them yet. I'll update when I find out more.
lurkingforacure is offline   Reply With QuoteReply With Quote
Old 05-21-2014, 08:16 AM #4
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Default TMS only for depression, not PD, in the US

I just found out yesterday that no one in the US will do TMS for PD....they will, however, treat PWP for depression with TMS. However, the coil that goes on the head for depression is NOT the same coil used with PD, so unless you have depression, and apparently pretty severe depression at that, you can't get TMS help

Kicker: TMS is actually approved for PD in the EU. They have the coil pieces for both depression and PD (and other indications as well). In the US, it would be considered an off-label treatment, and again, no one I know of has the coil to treat PD with TMS.

I have a call in to a center in San Diego that uses TMS for autism (off label), hoping they have the same coil that is used in Europe for PD, but haven't heard back from them yet. I'll update when I find out more.
lurkingforacure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
lab rat (05-21-2014)
Old 05-21-2014, 04:56 PM #5
lab rat lab rat is offline
Member
 
Join Date: Oct 2012
Location: Los Angeles
Posts: 108
10 yr Member
lab rat lab rat is offline
Member
 
Join Date: Oct 2012
Location: Los Angeles
Posts: 108
10 yr Member
Default Recent article on TMS

http://www.ncbi.nlm.nih.gov/pubmed/24726453
lab rat is offline   Reply With QuoteReply With Quote
Old 01-26-2015, 01:18 PM #6
rainbow676 rainbow676 is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
rainbow676 rainbow676 is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
Default

Quote:
Originally Posted by lab rat View Post
Lurkingforacure,

We found out that Dr De Erausquin in Florida treats PD patients with rTMS. Not feasible for us to travel at this point, unfortunately, but if you are close to Florida or able to travel more easily, you may want to look into his clinic.
__________________
Looking for different options for my mom, born 1946 and dX with PD in 2010.
rainbow676 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Betsy859 (01-29-2015), lurkingforacure (01-26-2015)
Old 01-26-2015, 02:11 PM #7
moondaughter's Avatar
moondaughter moondaughter is offline
Member
 
Join Date: Jul 2010
Location: rural Eastern Oregon
Posts: 613
10 yr Member
moondaughter moondaughter is offline
Member
moondaughter's Avatar
 
Join Date: Jul 2010
Location: rural Eastern Oregon
Posts: 613
10 yr Member
Default

Quote:
Originally Posted by rainbow676 View Post
Lurkingforacure,

We found out that Dr De Erausquin in Florida treats PD patients with rTMS. Not feasible for us to travel at this point, unfortunately, but if you are close to Florida or able to travel more easily, you may want to look into his clinic.
Lurking.....this doc has published numerous studies through the NIH working with TMS and PD - http://health.usnews.com/doctors/reuven-sandyk-83759 -I believe he is also associated with a Greek doc (Dr. Allonysis ....sp..?) who works with PD too...do keep us posted - I use an earth pulse device ...
__________________
Smooth seas do not make skillful sailors....
Nature loves courage.


“The day science begins to study non-physical phenomena, it will make more progress in one decade than in all the previous centuries of its existence.”
~ Nikola Tesla
moondaughter is offline   Reply With QuoteReply With Quote
Old 01-26-2015, 04:49 PM #8
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
Default

Quote:
Originally Posted by moondaughter View Post
Lurking.....this doc has published numerous studies through the NIH working with TMS and PD - http://health.usnews.com/doctors/reuven-sandyk-83759 -I believe he is also associated with a Greek doc (Dr. Allonysis ....sp..?) who works with PD too...do keep us posted - I use an earth pulse device ...
There are a number of Pulsed Electromagnetic Field (PEMF) devices on the market including SOTA, Curatron etc. which appear to be essentially similar to TMS devices as they also use pulsed magnetic fields. Neurostar rTMS is FDA approved for depression. Brainway rTMS is apparently approved for Parkinson's in Europe.

https://www.youtube.com/watch?v=Y8Q1iRCD2zA
zanpar321 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Betsy859 (01-29-2015), moondaughter (01-27-2015)
Old 01-29-2015, 05:56 PM #9
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

TMS has approval for treatment of Parkinson's Disease in Australia. Generally it is only available in private hospitals so it is expensive unless somebody has private medical insurance.

More generally, a while ago I listened to a talk about Parkinson's Disease at a scientific conference. The guy who gave it was from Cambridge and has both a PhD and a medical degree (impressive!).

He made the point that Parkinson's Disease (like cancer) is probably not "one disease" - rather it is a multitude of conditions with some clinical signs in common. That could explain why the various therapies for Parkinson's Disease are effective for some people but not for others.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Drevy (01-30-2015), zanpar321 (01-29-2015)
Old 01-31-2015, 11:10 AM #10
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
zanpar321 zanpar321 is offline
Member
 
Join Date: Feb 2014
Posts: 365
10 yr Member
Default

Quote:
Originally Posted by kiwi33 View Post
TMS has approval for treatment of Parkinson's Disease in Australia. Generally it is only available in private hospitals so it is expensive unless somebody has private medical insurance.

More generally, a while ago I listened to a talk about Parkinson's Disease at a scientific conference. The guy who gave it was from Cambridge and has both a PhD and a medical degree (impressive!).

He made the point that Parkinson's Disease (like cancer) is probably not "one disease" - rather it is a multitude of conditions with some clinical signs in common. That could explain why the various therapies for Parkinson's Disease are effective for some people but not for others.
Pulsed electric fields are apparently now approved by the FDA to treat cancer.

The portable device weighs about six pounds (three kg) and is used continuously throughout...

Tumor Treating Fields is the name given to low-intensity electrical fields emitted by a range of new medical devices. The FDA (US Food and Drug Administration) has approved subtle energy treatments for patients as an alternative to chemotherapy. The non-invasive treatment by Novocure uses "Tumor Treating Fields" (NovoTTF) to treat cancerous growths and is now available for adult patients with recurring brain tumors (recurrent glioblastoma or GBM). The treatment delivers electric fields to a patient utilizing a portable, wearable device that permits the patient to maintain normal daily activities without down time.

"Our device provides patients and physicians with a novel, non-invasive alternative to chemotherapy that is safe and effective," said Eilon Kirson, M.D., Ph.D., Novocure’s Chief Medical Officer. "The device allows for continuous treatment without the usual, debilitating side effects that chemotherapies inflict on recurrent GBM patients and indirectly on their families."

The portable device, which weighs about six pounds (three kg), is used continuously throughout the day by the patient. Tests indicate that the device can slow and reverse tumor growth by inhibiting mitosis, the process by which cancerous cells divide and replicate. The NovoTTF treatment involves placing pads onto the patient’s skin that creates a low intensity and alternating electric field within the tumor.

http://drsircus.com/medicine/tumor-t...cancer-program
zanpar321 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 10:55 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.