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11-16-2008, 02:11 PM | #1 | ||
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New Member
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I'm newly diagnosed & and want to SCREAM.
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11-16-2008, 05:59 PM | #2 | |||
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In Remembrance
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Both a rational response and good therapy in my opinion. Might kick a little furniture around, too.
Seriously, though, there are far worse things to have. In 2000, I went to a neuro convinced that I had a brain tumor. Do try to let the negative energy out in some way. That's one of the things that gotus into this exclusive club, anyway. In between these episodes, this is a good place to hang out. Good people and lots of support.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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"Thanks for this!" says: | rd42 (11-29-2008) |
11-28-2008, 04:49 PM | #3 | ||
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New Member
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My diagnosis is about 1-1/2 years old, and I suspect that I should think it is tragic, but I don't - maybe the anti-depressants are interfering with my ability to feel strong emotion. Yet though my right hand shakes like a leaf, I have problems taking notes at a business meeting and transcribing a phone number can require the effort it took Melville to write "Moby ****", and there are days that I think I need to use my arms to lift my legs up the subway station steps, I still haven't gotten it in my head that I have a condition that will prevent me from doing what I plan to do with my life. I've gotten no worse since my diagnosis. I've said nothing at work. I wish I could scream, because I am under the distinct impression that my inability to do so is more of a sickness than my PD. Kuaila, other than the label put on it, if you're under good treatment, what is making you so angry/frustrated?
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02-21-2011, 07:25 PM | #4 | ||
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New Member
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Hello, I suspect that my husband is about to be diagnosed with PD. He has an MRI this week and then we will go from there. I thought that he had frontotemporal dementia until he started having tremors in both hands and legs. He has difficulty standing in one place and balance is a concern. He can't sleep at night and has been clinically depressed for two years. Has anyone else had personality changes like noted in frontotemporal dementia but had it turn out to be PD?
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11-30-2009, 09:08 PM | #5 | |||
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Senior Member
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Kuaila,
Recently an old high school friend wrote to me about my "being allowed to suffer for the instruction of us all." He is very religious and I know his intentions were good. But it led to my screaming (alone at home) that I had enough suffering in my life thank you and I wished it would end. I believe sometimes you need to scream and should scream (in an appropriate place ) I have done this and then I go back to being as positive as I can be. You are not alone. We are sorry you have joined the club that no one wanted to be a part of. Good luck to you. Jean
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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"Thanks for this!" says: | NorCalGal (12-07-2012) |
02-22-2010, 03:40 AM | #6 | ||
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Junior Member
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the neurologist still wants me on sinemet for two weeks for diagnostic purposes....then if it proves true ...on something lighter since my
symptoms are mild....anyway i had a horrible onset of meralgia paresthetica that pushed back my start date with sinemet since I don't want to mix it with all the pain medication I'm on....the pain is receding somewhat with exercise and epidurals |
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05-28-2013, 06:11 PM | #7 | |||
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Junior Member
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Hey Guy's - I'm a total newbie to everything and feel so overwhelmed. I'm a 40 year old male (if you couldn't tell from my avatar) and was diagnosed for a 2nd time with PD two weeks ago. They put me on mirapex 3 times a day (1 MG each) and Primidone. I've had tremors for a long time but first it was RLS, then Essential Tremors, and now finally Parkinson's. I've been for a DAT scan as well as numerous MRI's and I am sorry to ramble....
I guess, I am NOT ready to handle this. It's scary and now the tremors in my right hand are constant. I feel like everyone is staring at me, and my kid's are starting to see things they have never seen. Thanks for having me here, I promise, I'll pull it together. |
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01-06-2015, 11:00 AM | #8 | ||
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New Member
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I was tested for everything under the sun within last 3 year's and we have ruled out everything. I can't tell if my doc thinks I am too young for a diagnosis, since symptoms aren't bad...mild for most part. Or if he thinks I am nuts. My dad has PD, his dad did to. I really would just like physical therapy prescribed for now. Wonder if getting a diagnosis worth it yet?
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