Parkinson's Disease Tulip


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Old 07-05-2014, 09:43 AM #21
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Quote:
Originally Posted by GerryW View Post
According to Dr. Hinz the nausea is caused by an imbalance of dopamine and serotonin. Adding the serotonin precursor 5-HTP in the right amount solves the problem.

The site is technical in parts but worth studying. I've been on the protocol for a couple of years with no problems.

Of course, her insurance may not pay and there is frequent mixing of powder with almond milk, orange juice, or whatever, but the claim is that as much levodopa as needed can be taken without side effects and that the disease doesn't progress. So far, that's been true for me.

Here is the article that got my attention originally: http://brainbodystore.com/wp-content...ns-article.pdf


Go Blue!
another technical explanation for potential nausea from taking l-dopa, which is why carbidopa is added. before carbidopa was added to make "sinemet", patients had to take up to 12grams!!! to get an affect and suffered extreme nausea at the start

http://books.google.com/books?id=R0W...eptors&f=false.
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Old 07-05-2014, 10:57 AM #22
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Quote:
Originally Posted by Shelley View Post
Hi all,

I am a former NT member/mod. My mom was dx'd yesterday with PD. She is very scared and I thought I would do some reading.

Any thoughts or suggestions for a newbie is appreciated. They gave her levodopa but she is afraid to take it and wants to start with 1 per day even though they told her 3 a day spaced out over 6 hours.

Shelley
I was scared of levodopa, too and kept putting off starting it. I finally got a prescription due to some encouragement I got on this site and then put it off some more because I couldn't find time in my schedule to risk feeling nauseous and miserable. I finally just ate a couple of saltine crackers and took my recommended dose of 1/2 of a 25/100 levo/carb pill and voila! no nausea but instead relief from pain and stiffness I was having. I've continued with the saltines and no problem. I'm kind of disappointed it hasn't helped my small motor though. I did have a depressive episode with crying last night but I have had this same trouble when starting the other two drugs I have taken, Azilect and Amantadine. The sky is blue again this morning though. I will step it up to a full pill on Monday and will keep you posted. Good luck to both of you! Kim
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Old 07-05-2014, 11:25 AM #23
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Quote:
Originally Posted by GerryW View Post
According to Dr. Hinz the nausea is caused by an imbalance of dopamine and serotonin. Adding the serotonin precursor 5-HTP in the right amount solves the problem.

The site is technical in parts but worth studying. I've been on the protocol for a couple of years with no problems.

Of course, her insurance may not pay and there is frequent mixing of powder with almond milk, orange juice, or whatever, but the claim is that as much levodopa as needed can be taken without side effects and that the disease doesn't progress. So far, that's been true for me.

Here is the article that got my attention originally: http://brainbodystore.com/wp-content...ns-article.pdf


Go Blue!
Gerry,
In a nutshell can you tell me what the claim is regarding progression. I am still considering starting the protocol.

Thank you
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Old 07-05-2014, 11:32 AM #24
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Gerry,
Does CHK nutrition sell to pharmacists?
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Old 07-05-2014, 11:33 AM #25
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Thank you all for the advice! I really like to understand the mechanics and theories of things so I hope to read a lot, gain an understanding if different theories and try to help my mom navigate through this. She is a timid person with medical issues so needs encouragement, support and direction. I hope with all of your knowledge I can help in some way.

Last edited by watsonsh; 07-05-2014 at 01:42 PM.
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Old 07-05-2014, 11:48 AM #26
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Shelley,
Best wishes for your mother.
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Old 07-05-2014, 11:59 AM #27
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Shelley - I recommend this new book (2014)

Alter your course

Parkinson's the early years

Monique L. Giroux MD
Sierra M. Farris PA-C

http://www.amazon.com/Alter-Your-Cou...er+your+course
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Old 07-05-2014, 12:00 PM #28
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i'm not a medical professional but my philosophy with pd and especially with elderly patients where simplicity is more important and where they have slower metabolisms and possibly other medical conditions, initially go with the conventional treatment that your doctor recommends and can work with you with. if you try the alternative methods and they don't work or have side affects you'll be responsible and having to explain to your mother's doctor what you did. it's totally different if it was you who had pd. it won't take long to find out how well sinemet works and there will be plenty of time to investigate alternative therapies, supplements, etc. later on. if the patient was a young onset with mild symptoms and wanted to explore possible treatments which might slow progression and alt symptom treatments, i'd say go for it, i tried a lot of things when first diagnosed before i went on meds, none had a noticeable beneficial affect.
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Old 07-05-2014, 12:03 PM #29
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I think she could wait on starting the med, if she is comfortable with her sx as they are now , and then start the med when her sx get too bothersome...

the members here can chime in on that on any pros & cons of waiting to start the meds..
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Old 07-05-2014, 12:25 PM #30
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Quote:
Originally Posted by soccertese View Post
i'm not a medical professional but my philosophy with pd and especially with elderly patients where simplicity is more important and where they have slower metabolisms and possibly other medical conditions, initially go with the conventional treatment that your doctor recommends and can work with you with. if you try the alternative methods and they don't work or have side affects you'll be responsible and having to explain to your mother's doctor what you did. it's totally different if it was you who had pd. it won't take long to find out how well sinemet works and there will be plenty of time to investigate alternative therapies, supplements, etc. later on. if the patient was a young onset with mild symptoms and wanted to explore possible treatments which might slow progression and alt symptom treatments, i'd say go for it, i tried a lot of things when first diagnosed before i went on meds, none had a noticeable beneficial affect.
I recommend the exact opposite. Do NOT start any meds until necessary and after you have tried or exhausted the safer alternative strategies. She has nothing to lose and everything to gain.
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