Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 06-26-2014, 10:01 PM #1
johnt johnt is offline
Senior Member
 
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
johnt johnt is offline
Senior Member
 
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
Default What sort of community are we?

What sort of community are we?

In the "real" world, if I miss two meetings of my support group, someone is on the phone wanting to know what's up.

In the on-line world, even people who have made hundreds of posts often just seem to disappear.

Is this what we want?

I'm not expecting this to happen any time soon, but I've asked my wife to post to the forum if anything makes it impossible for me to do so.

John
__________________
Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
johnt is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aunt Bean (07-05-2014), Jomar (06-26-2014), lab rat (06-27-2014)

advertisement
Old 06-26-2014, 10:53 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,721
15 yr Member
Default

Also any family member or close friend can use the Contact Us link at the bottom of every page.

It works very well when you don't want to share your log in/account info.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluedahlia (06-27-2014), johnt (06-27-2014)
Old 07-02-2014, 02:12 PM #3
Tupelo3 Tupelo3 is offline
Member
 
Join Date: Mar 2013
Location: New Jersey
Posts: 832
10 yr Member
Tupelo3 Tupelo3 is offline
Member
 
Join Date: Mar 2013
Location: New Jersey
Posts: 832
10 yr Member
Default

Quote:
Originally Posted by johnt View Post
What sort of community are we?

The question has been asked recently about what type of community we are. Well, I think after reading all of your moving and emotional comments about the loss Rick, I know. We're a community of people from all walks of life and different parts of the world. Like any family, we occasionally disagree, bicker and fight. Yet, in the end, we all suffer from the same illness and share many of the same goals. We all want to be able to enjoy our lives, our family and our friends as much as possible given the variety of nasty symptoms we endure; I believe we all desire to help others with PD, particularly the newly diagnosed; we all desire to move the science of PD forward; and we are all searching and striving to find a cure. I personally feel honored to be able to interact and learn from others on this site and appreciate everyone's participation and hope we can continue to bring on more active members with new and original thoughts.
Tupelo3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Arsippe (07-08-2014), Aunt Bean (07-05-2014), Bogusia (07-02-2014), Conductor71 (07-03-2014), dilmar (07-02-2014), imark3000 (07-05-2014), johnt (07-02-2014), lab rat (07-02-2014), Nan Cyclist (07-05-2014), pegleg (07-06-2014), soccertese (07-02-2014), Stand Tall (07-02-2014)
Old 07-05-2014, 07:04 AM #4
Aunt Bean's Avatar
Aunt Bean Aunt Bean is offline
Member
 
Join Date: Sep 2009
Location: East TN
Posts: 782
15 yr Member
Aunt Bean Aunt Bean is offline
Member
Aunt Bean's Avatar
 
Join Date: Sep 2009
Location: East TN
Posts: 782
15 yr Member
Default

I feel the loss of Rick so deeply and it has made me want to reach out to others even more. If you are a person with PD, don't shut yourself off from the world...you need people more than ever and sharing with others with PD is so valuable...both for moral support and informationm that may make your journey more pleasant. Get hooked into a local support group or at least have a friend with PD that will buddy with you and watch for signs or symptoms that you don't even notice....changes of ability, behavior, memory....don't be afraid to ask for help and reach out to others. Remember, you may be the one needed in the support group or friendship that is the stronger person need for the encouragement of the rest.....be there for others...remember Rick always.
Aunt Bean is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon72219 (07-05-2014), Bob Dawson (07-05-2014), Bogusia (07-05-2014), imark3000 (07-05-2014), Lana (07-05-2014), pegleg (07-06-2014), slashman48 (07-05-2014), Tupelo3 (07-05-2014)
Reply

Tags
community, missing


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A sort of question for all....with MS lailavia Multiple Sclerosis 10 11-19-2007 05:06 AM
Hello All I'm Sort of New BrokenBladder Fibromyalgia and Chronic Fatigue 6 11-26-2006 11:39 PM
I sort of LIKE it here....you can be yourself here.. KTM5665 Children's Health 12 10-07-2006 02:07 PM
New, sort of..... Bubbi Community & Forum Feedback 5 09-29-2006 10:10 AM
Community Guidlines discussion on Community and Forum Feedback Jaye Parkinson's Disease 1 09-25-2006 11:50 AM


All times are GMT -5. The time now is 06:44 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.