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08-24-2014, 11:34 AM | #1 | ||
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Magnate
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08-25-2014, 09:41 AM | #2 | |||
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I am going to donate but I wonder if MJFF will provide some money and if not, why not?
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Born 1948. Diagnosed 2011. DBS ON 7/17. Taking cd/ld 200 MG at 6 am, 9 am, 12 pm, 3 pm, 6 pm and 9 pm. Finasteride 5 mg, Life Extension Mix and Once-Daily Health Booster, Mitochondrial Energy Optimizer with BioPQQ, Optimized Curcumin (longvida), Triple Action Cruciferous Vegetable Extract with Resveratrol, Vectomega-3, Vit D3 5000U,Lithium orotate 5 mg, AMPK Activator, Kefiran, N-Acetyl-L- Cysteine (NAC), Tri-Magnesium, Advanced NeuroPro, Duozyme, Palmitoylethanolamide (PEA) Updated 9/21/17. |
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"Thanks for this!" says: | girija (08-26-2014) |
08-25-2014, 10:20 AM | #3 | ||
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08-26-2014, 07:46 AM | #4 | ||
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There are many PWP and their families who are becoming increasingly frustrated with what MJFF funds. I think most people have an appreciation for how complex PD is (or appears to be, one day the paradigm will seem so simple, I hope) but. still.
I'd love to see some of the mainstream PD advocacy groups pitch in on this and support it- we should only support those research groups that support the projects we do (speaking on an individual level here, not trying to crowdfund anyone into anything). But as everyone knows, once PD is cured, even with something like this which is merely a "turn back the clock" treatment, those in the field have a new career choice facing them. People being sick is lucrative to the mainstream advocacy groups just as it is to big pharma, for every illness, not just PD. Sorry to be cynical so early in the morning, but treating illnesses is big business for a lot of people. I am so grateful these brave souls are putting this project out there and hope and pray it will prove to be something that can help us all. If it does, we need to be thinking about how those who get helped by it can raise money to pay for the treatment for those parkies who cannot afford it |
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