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10-02-2006, 06:13 PM | #31 | |||
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Teresa!!!! So glad you found us! I was really missing your posts. If you do the DBS thing I will pray that it will be successful for you. (sorry I am so outspoken but I'm a little like Paula .."I gotta be me!" )
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10-02-2006, 08:56 PM | #32 | ||
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Junior Member
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Dale ,its interesting that you have noticed a decline in your balance since dbs...i have noticed my balance has deteriorated since dbs too.I am unsure if its: (a) directly related to dbs; (b) the progression of pd; (c) always been an issue, but had been masked by other symptoms (dyskinesia ) pre- dbs; or (d) all of the above.My feeling is that its a combination of all of the above.
What it does do is raise the question: Does the fact that post dbs i have worse balance than pre-dbs make my dbs a success or not?What defines a "successful" dbs? Just as the disease effects each of us differently, so too the results of dbs are uniquely our own- I am aware of people who having had dbs are virtually unable to speak intelligibly- yet are delighted to be able to move and view their surgery as very successful. One man's success is often another man's disaster. In my case I am more than happy to "trade" poor balance for no dyskinesia, greatly reduced meds,and no on/offs, glad to read that you had a similiar outcome. Cheers Cate |
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10-02-2006, 09:07 PM | #33 | |||
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Senior Member
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Quote:
What we know about GDNF is that it does grow new dopamine producing neuro-transmitters in the brain..And I often wonder what long term GDNF delivery therapy would accomplish..Im thinking..I wonder if in "X" amount of years if GDNF would grow enough new cells to have procedure reversed?
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There are those who see things as they are and ask..Why?..I dream of things that never were and ask..Why not?..RFK |
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10-02-2006, 09:58 PM | #34 | |||
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Member
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When you are young, your chance of a successful DBS is excellent, but if you are older - my guess is over 60 - I think you run a huge risk that a DBS will make things much worse. It may make older brains confused and disconnected.
My brain is addled quite enough by Requip and cabi/levad. and Amantadine, but at least I have some control over the medicines I take. At my age the risk of DSB adversely and permanently affecting my thought process, muddling my reasoning and impeding my speech is much too real. And anyway, even if I were very young, and even if DBS was 100% guaranteed to help without any risk whatsoever, I'd still not be brave enough to have holes drilled in my head and wires inserted in my brain. I really admire all of you who have, or plan to have DBS. You have great courage, and I wish you all great success. birte |
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