I'm looking for suggestions.

My husband was diagnosed with Parkinson Disease in 2005, however his symptons are not typical. The neurologists are baffled.(He's seen 4) For two years he's been tested, scanned. MRI'ed etc. and tried on a host of medications. No one has a clue what accounts for his condition.

He has no tremor, no pain, no dementia. He has extreme weakness and constant fatique which is not helped with bed rest. The problem is not muscular, his musces are strong. Yet he can bafely support his own weight even with help of a walker. (He weighs 140 and is 5'6') He is currently on sinemet and though the result is less than expected, his symptons do worsen when taken off the drug. Other druge tried have not had favorable results. The head of Neurology says there is clearly something at work, other than the Parkinson, bu they can't find out what. Any suggestions on where to go from here? I'm nearly at my wts end!