Hi
It is probably inevitable that most of us will be needing a caregiver as the PD progresses. I have seen people in the late stage of PD unable to move or worse having to use a feeding tube to eat due to swallowing difficulties. Hopefully we may be lucky enough to have an extended family or round the clock nursing. For those who worry about the long term symptoms that could emerge my question is: How do you stay in the now and also the treatment options under medicare/medicade facilities. My biggest fear is ending up in a medicare warehouse. My siblings all have to deal with their spouses and would not be able to assist me. What can be done now to prepare for that possible event.
At this time my DBS has my PD under control and I find myself worried about the future. Going back to the wheel chair and constant on off time still haunts me. Anyone in this forum who can tell me how to deal with the unknown and worry anxiety of such a possibility would be of great appreciation.
Thank you
Damon