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10-27-2014, 08:38 AM | #7 | ||
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Tupelo3,
You're probably right about the politics of the situation. And, what you propose is a reasonable way forward for the long term. But, 9 years after diagnosis I am not confident that there is enough urgency in getting things to market in time to help me. I am more confident that in areas such as tDCS, which are probably safe and relatively low tech, a DIY approach offers a useful supplement to mainstream activity. A basic tDCS system using a multimeter to monitor current can be built in about 10 minutes for about $20. The scientific challenge is to build into the system enough checks to be able to assert that the therapy leads to effects which are different from the placebo. The way forward is to get half a dozen people focusing on tDCS, and sending detailed instructions back to the PwP community about how to make the best use of it. It is interesting to note that at about 42 minutes into the video Poston answered a question about when tDCS would be available for Parkinson's by saying that, although he would not recommend it for off-label use, it was available now. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | lab rat (10-29-2014), soccertese (10-27-2014) |
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