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12-14-2014, 08:47 AM | #1 | ||
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Junior Member
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Hi,
ive been on sinemet for about 2 yrs.two months into dyskinseas now.is there any way to get rid of the sideeffect, maybe using more requip. Is once dyskinesas appear you are stuck with them.? happy holidays john |
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12-18-2014, 10:25 AM | #2 | ||
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Junior Member
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Hi, icould use some feedback.ive had dyskinesa for two months.is there anything I can do to get rid of them.md has been avoiding me.taking after food has helep ( more anxiety) .I want to try more requip less sinemet
thsnks john |
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12-19-2014, 07:14 PM | #3 | ||
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The last time I saw my MDS last July, he told me I could have my choice between freezing and dyskinesia. He could get rid of the freezing by prescribing more Sinemet, or he could get rid of the dyskinesia by giving me less. I'm on the maximum Mirapex. I told him it depends on what I'm doing which I'd prefer, so he wasn't much help.
In Oct. I increased the Sinemet a little because it's hard to get things done if you're waiting for yor feet to move some of the time. But by early Dec. I found the dyskinesia socially annoying and it could be exhausting, so I've cut back to where I was in the summer. I'm trying out Terry Wahl's diet to see if that will help - that's the one with nine cups of vegetables. I've had PD for about 15 years, began taking Sinemet in early 2005, gradually worked up to 5 of the 25/100 by 2008, and have 't increased it since. I've been increasing the Mirapex by a tiny amount instead, but can't do that anymore. I had very mild dyskinesia starting about two years ago, I think, but it's just been annoying lately. The Wahl diet, as best as I've been able to stick with it so far, makes my meds work better so I need to see how far it will take me. Just personal experience, hope it helps. |
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12-20-2014, 05:13 AM | #4 | ||
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Can only speak for myself however I have found Amantadine has done wonders for my dysks. Virtually got rid of them. Only alternative I know of is to take sinemet more regularly and in smaller doses, try Stalevo 75 rather than 100 every two hours rather than three times a day. Helps smooth out the dopa spikes that cause dysks.
Hope this helps, Neil |
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12-20-2014, 09:36 AM | #5 | |||
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Junior Member
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I've been experiencing some dyskinesia just in the last month. Have been taking 3 25/100 Carbidopa/Levodopa generic 3 times a day for over a year. Sometimes get it with my morning and or evening dose about 1-1/2 to 2 hours after dosing, which I eat about an hour after dosing. It usually lasts about an hour. Have increased my coffee intake from 1 cup in the mornings to 2-3 cups throughout the day and am also exercising more lately. Will be consulting with my MDS about lowering my meds next appointment in January. Did try lowering by 1/2 pill
for a few days and I seemed to be doing fine with it. Noticed I didn't get as sleepy when I lowered it. At this point would rather have a little stiffness & tremor than the dyskinesia. Also take 1 sinemet 50/200 ER at night, but I seem to get real itchy after about 2 hours after taking. I wonder if it could be a reaction to the dye in it. |
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"Thanks for this!" says: | john1947 (01-02-2015) |
01-01-2015, 05:42 PM | #6 | ||
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Junior Member
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Quote:
Ill look into the diet as I sure need to lose a few pounds,maybe drug sideeffect roperinol.Im taking 8 mg ropinerol. My dyskinesa is very quick flaing arms and feet sometimes. Hope you have a pleasant New years,good health john |
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01-02-2015, 07:28 PM | #7 | ||
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Junior Member
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Quote:
It is called a priming process that occurs at abot 600 to 800 mg.Once this priming occurs there is no going back.Ma I myself was taking about 600 25?100 and started a 50/200 sr just before the dyskinesa started.So I was at 800 just like the study stated.This blew by a MD doc and it could have been avoided. Dyskinesa risks and therapy should be a number one proiorty. We have a serious illness and we dont need one thats worse. |
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