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02-23-2015, 03:08 PM | #1 | ||
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The Michael J. Fox Foundation has begun a new pilot clinical study called Fox Insight. The study is designed to collect information about living with PD directly from patients and their loved ones. If you would like to participate you can register at www.foxinsight.org
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02-23-2015, 03:13 PM | #2 | ||
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In line with my previous post, MJFF had a research study published today in the Journal of Parkinson's Disease based up data collected from the first three years of operating Fox Trial Finder (www.foxtrialfinder.org). Key findings point to insights for both patients and trial teams on aspects of life with Parkinson's that may impact research recruitment and participation. The de-identified data in Fox Trial Finder could illuminate trends about how Parkinson's family history or connection, length of time since diagnosis, previous medical procedures and simple geography affect recruitment, helping studies connect with eligible volunteers and vice versa.
http://www.prnewswire.com/news-relea...300039632.html |
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"Thanks for this!" says: | lab rat (02-24-2015) |
02-23-2015, 06:22 PM | #3 | ||
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MJFF are to be commended for doing this.
Registration goes smoothly. This is followed by a section where you enter symptoms, I have so many and my typing is so slow that I estimate that it would take me 30 minutes to complete, rather than the expected 5 minutes. I didn't complete it. I think that data entry here could be made much faster (a simple table). John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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02-23-2015, 06:34 PM | #4 | ||
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Quote:
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