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03-04-2015, 12:23 PM | #21 | ||
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"Thanks for this!" says: | Thelma (03-04-2015) |
03-04-2015, 02:33 PM | #22 | |||
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__________________
Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. |
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03-05-2015, 02:18 PM | #23 | ||
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I also found this which was interesting. http://forums.phoenixrising.me/index...iciency.24059/ |
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"Thanks for this!" says: | anagirl (03-05-2015) |
03-07-2015, 10:08 AM | #24 | ||
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Benfotiamine is oil based so it doesn't go thru the digestive tract .. it goes thru the liver and directly into the bloodstream. This circumvents the possible absorption problems of thiamine pills, which pass thru the digestive tract.
Therefore I think this is a good approach to try. There are a lot of new theories about digestive bacteria causing nutrient shortages with PD. There is so much we do not really know about gut bacteria. Has anyone ever tried B2 supplementation? I read of a study where they dosed 100 mg every 6 hrs for 3 months and tremors were dramatically reduced and most importantly .. the results stuck. |
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03-21-2015, 07:51 PM | #25 | ||
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Hi everyone -- I wanted to report my mom's progress on benfotiamine. She is taking 900-1200mg per day. She thinks it is taking the edge off the restless legs (currently one of her most troubling PD symptoms). Not a major difference, but maybe a 15-20% improvement. And hey, any improvement -- however small -- is definitely welcome. I hope others are continuing to have good results with this, too.
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Looking for different options for my mom, born 1946 and dX with PD in 2010. |
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03-21-2015, 08:39 PM | #26 | ||
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04-20-2015, 02:09 PM | #27 | ||
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"Thanks for this!" says: | BreezyRacer (04-20-2015), Drevy (04-29-2015) |
04-28-2015, 03:28 PM | #28 | ||
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My daughter wrote to the Italian authors of this paper seeking clarification :
http://www.ncbi.nlm.nih.gov/pubmed/23986125 They said it is best to have intramuscular injections twice weekly, 100 mg thiamine. If you have to make do with oral treatment they recommend 4 grams daily, of thiamine, 2 g in the morning and 2 g at lunch. My daughter asked them to specify the form of thiamine and they said use water soluble as fat soluble DOES NOT cross the blood brain barrier. I take it that means thiamine is correct, Benfotiamine is not. They suggest using Solgar 500 mg caps. But Source Naturals b1 is cheaper. |
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04-28-2015, 03:42 PM | #29 | ||
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In addition, I suggest buying a pill splitter at the same time, as these are large tablets.
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