experience with benfotiamine so far

zanpar321 · 03-04-2015, 12:23 PM

Quote:

Originally Posted by lurkingforacure

I am confused here....the articles we are reading that have the amazing results (and the guy with MS who injected thiamine daily to keep his MS in remission) say the thiamine is a parenteral injection, but when I looked Benerva up, it appears it is a pill, is that correct?

I think we might see some modest benefit from thiamine in pill form, but don't think we can really hope to replicate the results seen in the articles posted in this thread without going the injection route.

For what it's worth, I am finding that the injectable thiamine will require not only a script, but also a compounding pharmacy to make it. So if you take low dose naltrexone, that is made by a compounding pharmacy and they may be willing to also mix up some injectable thiamine for you if your doctor will script it for you.

My understanding is that Benerva is just another name for Thiamine. Benerva/Thiamine pills can be readily purchased but will not easily cross the BBB as much as an IM injection.

sim00 · 03-04-2015, 02:33 PM

Quote:

Originally Posted by lurkingforacure

I am confused here....the articles we are reading that have the amazing results (and the guy with MS who injected thiamine daily to keep his MS in remission) say the thiamine is a parenteral injection, but when I looked Benerva up, it appears it is a pill, is that correct?

I think we might see some modest benefit from thiamine in pill form, but don't think we can really hope to replicate the results seen in the articles posted in this thread without going the injection route.

For what it's worth, I am finding that the injectable thiamine will require not only a script, but also a compounding pharmacy to make it. So if you take low dose naltrexone, that is made by a compounding pharmacy and they may be willing to also mix up some injectable thiamine for you if your doctor will script it for you.

Hello Lurking, Benerva is produced in different forms, but the most effective one is obviously that in intramuscular injections. The doctor told me to make one on Monday and one on Thursday (for example) in the morning if possible, to avoid episodes of mild insomnia. Also told me to film me today and film me between 15-20 days to see the first tangible results. I have nothing to lose. I will try. Zero side effects. Thanks Lurking.

zanpar321 · 03-05-2015, 02:18 PM

Quote:

Originally Posted by sim00

Hello Lurking, Benerva is produced in different forms, but the most effective one is obviously that in intramuscular injections. The doctor told me to make one on Monday and one on Thursday (for example) in the morning if possible, to avoid episodes of mild insomnia. Also told me to film me today and film me between 15-20 days to see the first tangible results. I have nothing to lose. I will try. Zero side effects. Thanks Lurking.

I continue to experience good success with Benfotiamine with increased energy levels and great voice strength. Since a softer voice was the first symptom I experienced when I was diagnosed it seems logical that it would be the first thing to be reversed! Tremors are still persistent but seem to be a little less often.

I also found this which was interesting.

http://forums.phoenixrising.me/index...iciency.24059/

BreezyRacer · 03-07-2015, 10:08 AM

Benfotiamine is oil based so it doesn't go thru the digestive tract .. it goes thru the liver and directly into the bloodstream. This circumvents the possible absorption problems of thiamine pills, which pass thru the digestive tract.

Therefore I think this is a good approach to try. There are a lot of new theories about digestive bacteria causing nutrient shortages with PD. There is so much we do not really know about gut bacteria.

Has anyone ever tried B2 supplementation? I read of a study where they dosed 100 mg every 6 hrs for 3 months and tremors were dramatically reduced and most importantly .. the results stuck.

rainbow676 · 03-21-2015, 07:51 PM

Hi everyone -- I wanted to report my mom's progress on benfotiamine. She is taking 900-1200mg per day. She thinks it is taking the edge off the restless legs (currently one of her most troubling PD symptoms). Not a major difference, but maybe a 15-20% improvement. And hey, any improvement -- however small -- is definitely welcome. I hope others are continuing to have good results with this, too.

zanpar321 · 03-21-2015, 08:39 PM

Quote:

Originally Posted by rainbow676

Hi everyone -- I wanted to report my mom's progress on benfotiamine. She is taking 900-1200mg per day. She thinks it is taking the edge off the restless legs (currently one of her most troubling PD symptoms). Not a major difference, but maybe a 15-20% improvement. And hey, any improvement -- however small -- is definitely welcome. I hope others are continuing to have good results with this, too.

Hi Rainbow. That's great news about your mom. I was taking 1000mg twice a day and stopped for a few days and my tremors definitely intensified but mostly my voice strength dropped precipitously and restless leg resumed. So I think it really makes a difference and have resumed my normal doses.

Muireann · 04-20-2015, 02:09 PM

Another b1 paper

http://www.neurores.org/index.php/ne...e/view/155/156

Muireann · 04-28-2015, 03:28 PM

My daughter wrote to the Italian authors of this paper seeking clarification :

http://www.ncbi.nlm.nih.gov/pubmed/23986125

They said it is best to have intramuscular injections twice weekly, 100 mg thiamine. If you have to make do with oral treatment they recommend 4 grams daily, of thiamine, 2 g in the morning and 2 g at lunch.

My daughter asked them to specify the form of thiamine and they said use water soluble as fat soluble DOES NOT cross the blood brain barrier. I take it that means thiamine is correct, Benfotiamine is not. They suggest using Solgar 500 mg caps. But Source Naturals b1 is cheaper.

Muireann · 04-28-2015, 03:42 PM

In addition, I suggest buying a pill splitter at the same time, as these are large tablets.

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
benfotiamine	Andrew11	Vitamins, Nutrients, Herbs and Supplements	0	02-23-2013 05:34 PM
Benfotiamine	invisable	Peripheral Neuropathy	3	11-30-2010 02:29 PM
Benfotiamine	Doxie	Peripheral Neuropathy	2	03-12-2009 11:16 AM
Benfotiamine	Mark._.	Peripheral Neuropathy	3	09-18-2007 08:58 AM

Site Navigation

NeuroTalk Online Support Groups

experience with benfotiamine so far

NeuroTalk Forums