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Infrared Helmet Claims to Reverse Symptoms of Parkinson's

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Old 03-19-2015, 07:51 PM   #31
curem
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Quote:
Originally Posted by Jo*mar View Post
I don't know about the costs , but I'm thinking LEDs should be cheaper than low level laser diodes. Unless it has something to do with the # nm part.
I don't know if anyone here ever finalized a helmet design, or actually tried it.

Since you are looking outside the box for treatments, what about things like grounding/earthing, detoxing, naturopathy, acupuncture?

What are your dad's most bothersome symptoms?



I can recommend low level laser therapy (also called cold laser, soft laser) for muscle & joint pain, as I had successful and quick results @ chiro appts. Treatments were for wrist, foot, shoulder, elbow, low back & neck pain. Many times it only took a one time tx of 20-30 seconds to stop the pain in this spot.
Thank you very much for the recommendations. His most bothersome symptoms are muscle pain in his right mid-back, tremors, and nausea. Cognitively he is functioning very well. He has tried a chiropractor for the back pain, but unfortunately that didn't help much, but I know that results are highly dependent on the practitioner. We are going to try to find a massage therapist for him next, as well as visit the person in Delray known as the "foot whisperer." I will give a detailed report on our visit once we do so in case anyone else is interested.

The laser therapy is in fact one area I have on my to-do list to investigate, so I appreciate your anecdotal evidence. Neurofeedback helps with his anxiety and depression, and his tremors stop while we are doing the training, but return when the session is over. But the same is true for when he meditates. (It helps anxiety and tremors temporarily.)

I have a neighbor who is a researcher in the neuroscience department of the local university, so I will discuss the helmet idea with him next time I see him. Perhaps they might sponsor a study with grant money, or design a helmet themselves. Since the treatment is only six minutes per day, I don't see why a helmet couldn't be designed with empty placeholders, and the user could switch the position of one or two LED lights around the head to offset the cost. If the LED with lens, casing, and fan cost a total of $400, then I could see creating a helmet that costs below $1,000. I will also approach the bioengineering department to see if this is a project they might be interested in undertaking with their students.

With regard to naturopathy, we are lucky to have a mainstream MD who is also a functional medicine specialist, and who embraces some of the theories that first began with naturopaths. We are currently investigating SIBO as the cause of my father's nausea. According to one study, 55% of people with Parkinson's also have SIBO, perhaps due to poor gastric motility. If he does have SIBO, low-dose naltrexone has successfully been used in treatment-resistant cases, as promotes motility and decreases inflammation of the gut:

http://www.ldnscience.org/interviews...in-ibd-ibs-rls

As I am sure has been discussed many times on this forum, LDN is also a medicine that has been reported to help some people with Parkinson's, so it would hopefully help with SIBO as well.

He tried acupuncture for the nausea and it worked well the first couple of times, but then didn't have much effect. I don't know much about grounding or what type of detoxing therapy you have experience with, but I think chelation therapy is sometimes used in cases of heavy metal toxicity. I don't know what efficacy it has, since I haven't looked at the research.

I will take more of a look at what you're suggesting, and I really appreciate your response
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moondaughter (03-21-2015)
Old 03-19-2015, 09:02 PM   #32
johnt
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I would not pay $15000 for this procedure. The uncertainty of whether near infrared light technology is efficacious for PD is too high, in my opinion, to justify spending that amount of money. And even if this technology proves to be useful, it may be no better than spending time in the sun. Exercising, walking and playing tennis in the sun, is probably a reasonable alternative.

The fact that this technique has been around since at least 2008 and not become mainstream in PD suggests to me that it does not offer much directly.

But, there's more to life than direct causality. LED technology does offer something as a "therebo" (possible THERapy or placEBO). Given the position of the substantia nigra, PD is always going to be a hard target for this technology to address, but it may offer something in the way of relieving other conditions experienced by PwP.

That said, I believe that the science behind the technology is well worth studying.

I have now found on ebay UK 100 1050nm LEDs for £12. LEDs emit a spectrum of radiation, albeit narrower than the classic black body, but still wide enough to include 1072nm. (Anyhow, my take on the theory is that 1072nm exactly is not important. It is used because it offers good penetration in body tissue. This allows less powerful LEDs to be used, thus reducing unwanted heating elsewhere.) A basic helmet could be made for about £20.

Anyone experimenting with this technology is urged to act prudently. There is, it seems to me, the risk of dangerous levels of heating of the eyes and the brain developing.

Finally, I'm very impressed by the quality of the original thread back in 2008. That's before my time on the forum, so I cannot claim any credit. Let us try to reach that standard now.

John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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soccertese (03-20-2015)
Old 07-11-2019, 12:53 AM   #33
RooJr
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So where did this end up?

Lots of recent information and studies relating to infrared lights for Parkinson’s.

Red lights on the brain – Red and near infrared lights – can they help degenerative neurological diseases?
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