Parkinson's Disease Tulip


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Old 03-25-2015, 09:03 AM #11
badboy99 badboy99 is offline
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Originally Posted by cbrf1wr View Post
Family History knocked me out. Guys in Orlando seemed really anxious to get some people in the study. If you are interested sign up on their website they will call you back. Sounded like about a dozen visits over 6-7 months. Two treatments over that time period. Orlando is an easy place to fly in-out of from pretty much anywhere
Can you provide more details?
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Old 03-25-2015, 06:41 PM #12
cbrf1wr cbrf1wr is offline
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That's pretty much all the info I got. They have two studies going, I think both are the Prothena alpha synuclein treatment. They do a full work-up on you to get a baseline including MRI, and maybe a DAT scan if they need it. Then a spinal tap. After that if you still qualify they give you the drugs. Then it's weekly or biweekly visits to get blood work and see if the drug is doing anything or if you are having any adverse side affects. Said I might have qualified for 75 bucks a visit payment with posibly a grand at the end. Sorry I missed out on this one. Sounds like they are pretty confident they got something that works. They said more studies are in the works might be OK for one of them later.
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Old 03-25-2015, 07:51 PM #13
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Originally Posted by badboy99 View Post
Can you provide more details?
I have a copy of the Patient Information and Consent Form. It's 28 pages so I can't copy and paste it here. I would be happy to email to anyone interested. Just PM me with your address.
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