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05-09-2015, 06:39 AM | #11 | ||
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My daughter wrote to the Italian authors of this paper seeking clarification :
http://www.ncbi.nlm.nih.gov/pubmed/23986125 They said it is best to have intramuscular injections twice weekly, 100 mg thiamine. If you have to make do with oral treatment they recommend 4 grams daily, of thiamine, 2 g in the morning and 2 g at lunch. My daughter asked them to specify the form of thiamine and they said use water soluble as fat soluble DOES NOT cross the blood brain barrier. I take it that means thiamine is correct, Benfotiamine is not. They suggest using Solgar 500 mg caps. But Source Naturals b1 is cheaper. |
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"Thanks for this!" says: | anagirl (05-10-2015), badboy99 (05-10-2015), BreezyRacer (05-09-2015), lurkingforacure (05-09-2015), moondaughter (07-15-2015), norton1 (05-16-2016), TexasTom (07-15-2015), zanpar321 (05-09-2015) |
07-14-2015, 07:26 PM | #12 | ||
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Muireann, thanks for this helpful information. Have you pursued this treatment, and if so, have you seen any benefit?
Sim00, it was great to hear that you were doing so well a couple months ago. Would you be able to share an update of your progress with this treatment? I hope that you have continued to experience good benefits. Many thanks!
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Looking for different options for my mom, born 1946 and dX with PD in 2010. |
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"Thanks for this!" says: | sim00 (07-15-2015) |
07-15-2015, 03:11 PM | #13 | |||
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Quote:
regarding to this kind of treatment I can say to be very satisfied, in the sense to feel greater strength and resistance, which allows me to work better, for example. Right now I am doing three injections a week.
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Sim00 Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016. Last edited by sim00; 07-15-2015 at 03:14 PM. Reason: wrong typing |
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"Thanks for this!" says: | moondaughter (07-16-2015) |
08-16-2019, 12:26 PM | #14 | ||
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08-31-2019, 08:54 PM | #15 | ||
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I tried the other B1 vitamin but it didn't work for me . Benfotiamine is water and fat soluble. It works for me at 250mg and I take R alpha Lipoic Acid with it 100 mg. Both twice a day. And I will try the Reishi mushroom too. Between the vitamins and DBS I am doing very well! But every Parkie is different.
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10-23-2019, 02:24 PM | #16 | ||
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[QUOTE=TryingMyBest;1279375] . Benfotiamine is fat soluble too which means that at high levels it can be toxic as it is stored in fatty tissues.
Just a heads up that it caused me a high pulse heart rate with what I felt was flutterings...which happens to be a side effect! So I imediately stopped the B1 but still doing the R Alpha Lipoic Acid,and my heart rate stabilized and was lowered. For exercise I should walk. But yoga works for me. |
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