Parkinson's Disease Tulip


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Old 09-30-2006, 06:53 AM #4
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
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I was taking the 25/250 generic carbidopa which is not CR, just stronger. Dyskinesia was frequent. Neuro asked me if I had ever tried less sinemet, which I hadn't.

Now on two 25/100s per dose, which reduces sinemet by 20% and I can already see less dyskinesia. I do use the wrapping, especially on my bad side - on both upper arms, bad ankle and wrist -full time at home and overall feel better with far less dystonia. Now the sinemet reduction could also be contributing to the less dystonia.

My sinemet always had me racing. It feels good to be calmer. I'm still working on the timing, but regardless of the amount, I think taking smaller amounts more frequently is better for me. But I no longer have to be anywhere in the mornings.

I think it's important to document this stuff. I mean, just when are we going to have another opportunity to go through life with parkinson's?


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