Hi -

I hope I didn't mislead you - I went to visit Carolyn Sunday the 24th and had my surgery on Tuesday the 26th.

Dottie

Dottie
that's even MORE impressive! Knowing (and seeing) that you were taking a risk, you still did it. Your are my kind of person!
Peg

Thank you, Carolyn and Dottie!!!!
You are in my thoughts and prayers.
Speedy recovery to you both!

Mary

Just wondering how Carolyn is doing and whether she is still in the hospital.

Could Paula, Peg, or Jean please fill us in?

Thanks,

Judith

Carolyn got to go home last week, but I just heard she went back to the hospital for more tests. Her family is with her, and I know that means a lot to her.

I have spoken to her recently, and she sounds better - I believe she IS improving.

We love you, Carolyn!! Best wishes to you!!

Everyone, please keep her in your thoughts and prayers.

Carolyn is back in the hospital - mostly for precautionary reasons by her kid's requests.

I talked with Carolyn a long time today. She sounds very tired but is cognitively more alert - not giving short yes or no answers.

Here's all they know:

She fell AFTER the surgery and AFTER she came out of ICU (she was in what you call a step-down room. I don't think anyone was there. She has no idea what happened, but when she fell, she hit her head. There was no cut but a hard fall. They are speculating that she had a seizure - pretty common, they say, with insults to the brain.

For a while Carolyn was very "out of it." She could not carry on an intelligent conversation, nor could she do simple things like fix something to eat or take care of daily hygiene. Thank God that is clearing up. They (her medical team and family) will decide over the weekend and based on how much she improves, whether she needs home care 24/7 - hospitalized skilled nursing care - or just a little TLC.

She gave me permission to tell you this.
Peggy

PS - she said to make it clear that her problem had nothing to do with the gene therapy - it was just an unfortunate set of circumstances. Keep her in your thoughts and prayers

Thanks to Carolyn, Dottie and other heros who venture the clinical trial in finding a cure/ treatment to PD really deserve our respect, applause and care. Hope all of you have a healthy recovery!

Remarks: I am a PD living in Hong Kong. The PD community in Hong Kong remains very silent here and there is virtually no R&D in PD treatment

Peg,

Thanks for updating us. I'm sorry to hear about Carolyn's fall and the problems she has had since then. I hope they will quickly get her the help she needs and that she will recover completely and very soon.

If i'm interpreting your message correctly it sounds like there was a step down into her room.I wonder about the wisdom of putting a person with PD or anyone who has had brain surgery in a "step-down room" where the chances are greater for a misstep and fall.

Judith

I think step-down is a term for a less intense care room. It is between ICU and a regular room and patients are transferred there when they do not need the all-out care of ICU but are not ready to receive the reduced attention given patients in a regular room.

Ann

My best wishes to Carolyn for a speedy recovery from the fall.

You are one really courageous and pioneering gal, Carolyn!
Hoping the gene therapy proves effective and shines another ray of hope for all PWP

You remain in my thoughts and prayers

Cheri