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#1 | ||
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Magnate
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Quote:
thanks a million dilmar, your experience/opinion is very helpful. and thanks for your opinion nigel. i gotta extend my on times. luckily my insurance will pay for XL with prior auth. just as an aside, i know a number of people with pd for more than 10 years who seem to be doing very well, met them at a spinning class, and are all taking stalevo, amantadine and requip, not sure which formulation though. a few questions for anyone taking the requip xl 1. what generic are you taking and do you have a preference? i only ask because there are different generics. just curious dilmar, what benefit do you notice from the selegilene? i used to take it years ago before my symptoms became a lot worse and the main benefit was an energy boost for 1-2 hrs, but eventually stopped. how long have you been taking it? thanks again. |
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#2 | ||
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Senior Member
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soccertese,
I'm 10 years post diagnosis and doing fairly well in spite of very bad constipation and emerging dystonia. For instance, last week I did an 18 mile walk, which I would have found easy were it not for a painful lean to the left that developed during the day. For the last 5 years I've been on Stalevo, 75mg four times per day, ropinirole controlled release 16mg once per day (though I'm currently trying it at 8mg twice per day), rasagiline (1mg per day). Sometimes I get the brand name Requip XL, sometimes the generic Ralnea XL. I haven't done any detailed measurement of their relative effect, but subjectively I can't tell any difference between them. The rasagiline has no obvious effect on me. This is consistent: - either with a low but continuous impact totalling the equivalent of 100mg over a day; - or with it having no effect. I've not done the experiment to determine which of the cases it is. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | dilmar (09-15-2015), soccertese (08-19-2015) |
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#3 | |||
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Member
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Quote:
This answer may be redundant now it is so long after you posted your questions but here goes. Re generics of requip XL I take whatever I get dispensed and it can change each 3 months. So far it has been ok with no noticeable differences in effect. I have been wondering about the Selegiline myself. I only take 5mg/day and I think the effects are negligible, it hardly seems to extend on time but I take it at 8 am and it does give me morning energy and I feel alert, it's worth it for that I feel. I have been on it nearly 2 years. I wonder if you adjusted your medication regime and if so have you got benefit from the adjustment. Johnt I see my experience is very similar to yours. Regarding taking ropineroleXL in divided doses I am finding it works ok but you may be interested in one observation. At first I took the evening dose as I went to bed but I decided to take it earlier to see if it helped improve pm med control. What I noticed was that taking it between 4-6pm I no longer got oedema of the ankles and so I feel it is better for my cardiovascular system taking it at the earlier time.
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"We don't see things as they are, we see them as we are." Anais Nin. |
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"Thanks for this!" says: | johnt (09-15-2015) |
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#4 | ||
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Senior Member
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Dilmar,
You raise an interesting point regarding a possible link between ropinirol and swollen ankles. This is not something I've considered, nor tracked before. But, now that you mention it, last winter I had swollen ankles, and now, following splitting the dose, I don't. Causality? Who knows? Once again, I'm left wishing I tracked more symptoms. John
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Born 1955. Diagnosed PD 2005. Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg |
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"Thanks for this!" says: | dilmar (09-15-2015) |
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