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05-20-2018, 01:56 AM | #131 | |||
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Grand Magnate
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Thanks jeffreyn.
I had not realised that Dr Hinz has such an "interesting" track record. As an aside there are many journals like those published by Dove Medical Press which charge extremely high fees, Some reputable journals charge page fees but these are very modest in comparison to those charged by Dove Medical Press and can be waived if the investigators can show that their research funding does not include a provision for page fees,
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"Thanks for this!" says: | Bogusia (05-20-2018), made it up (05-20-2018) |
03-10-2019, 05:22 AM | #132 | |||
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Junior Member
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Well theres a few things that come to mind. Established medicine can become entrenched. Marty had the guts to turn up here. Always people pushing boundaries get flak. Where has mainstream medicine got to with this disease?
The Guy here in Australia who outed Thalidomide was given a very hard time. Big Pharmacy is making billions off the status quo for a lot of disease symptom control. Big Pharm does not do much real self funded R & D. Research is controlled. Cheap cures are sidelined for as long as possible. CBD. Mucuna. etc Marty is not all wrong i.e. 5HTP effects. B6 issue. Precursor depletions. No I dont know Marty. |
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"Thanks for this!" says: | parkinsons here-now (03-11-2020), RooJr (03-14-2019) |
03-10-2019, 05:04 PM | #133 | ||
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Quote:
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03-11-2019, 10:12 AM | #134 | ||
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Magnate
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Quote:
BEANS, ROOT AND LEAVES A HISTORY OF THE CHEMICAL THERAPY OF PARKINSONISM google brings up the .pdf but i don't know how to get the link, just google BEANS, ROOTS AND LEAVES PARKINSON'S and it should come up in the first page of the search. i think after reading it you might come to the conclusion that hundreds if not more substances were tested on pd and l-dopa with carbidopa just works better by far than anything else. if mucana worked that great and could compete in the marketplace against ridiculously cheap carbidopa/levodopa it would have supplanted C/L by now in the western world. what people lose sight of is it that it seems pharma was ready to give up on l-dopa because of the high cost of the grams of l-dopa one had to take before carbidopa was developed and the extreme side affects of that l-dopa, i assume it was darn hard to find doctors wanting to do trials and subject patients to that much misery. if it weren't for some very dedicated researchers maybe we'd be taking mucana now instead of C/L. Sure money was the motivation for pd drug deveopment, but i'm sure glad i have C/L, I couldn't imagine what life for advanced pd'er was like before it, must have been a living hell and i'm sure pd'ers didn't live as long. i'm willing to pay PHARMA something for those extra useful years. as for today, we have no cure which is unacceptable but i understand how hard it is to recruit patients into trials where they undergo brain surgery when C/L works so well and reversible DBS is an option and the disease has no accepted biomarkers yet. i'll never understand why people show up here and bash C/L when on the other hand it seems most HINZ protocol posters never last for more on the protocol, high cost being a factor since you have to buy everything from your health care practitioner and the difficulty of consuming grams of mucana, and bottom line, nothing about their personal experience can be verified. |
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03-11-2019, 04:29 PM | #135 | |||
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Grand Magnate
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TheFallen, my personal experience of PD is confined to an uncle of mine who lived in a country town in NZ.
Initially he had problems getting a C/L dose which was effective for him. I suggested that he discuss this with his doctors; this worked for him. Perhaps this is an approach which would work for you as well.
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03-13-2019, 02:26 AM | #136 | |||
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Junior Member
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Quote:
A medical whistleblower William McBride won world recognition for exposing the dangers of thalidomide but incurred the wrath of pharmaceutical firms. By CHARLIE PEEL |
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03-13-2019, 03:01 AM | #137 | |||
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Junior Member
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Quote:
Without a PD etiology and with symptomatic treatment only existing and no real progress being made (maybe GDNF) my course of action seems reasonable. Re Hinz he is just one of many sources of data Ill tap. |
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03-08-2020, 09:15 PM | #138 | ||
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Newly Joined
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Quote:
Hope both you and your husband are doing well. I am not sure if either of you are on this protocol anymore, but I have a family member trying it and having issues with Cysreplete. Therefore, I was curious is there were a particular brand of the L-Methionine that is/was being used since that's the next step? Would you be able to share this brand? I could try to google it unless you have a online store where I could look it up. Any particular brands for the following: 1. 400 mcg selenium (this one especially as I know it's part of the L-Methionine protocol)? 2. 800 mcg folate/5-MTHF? 3. Calcium – 220 mg? 4. L-Lysine: 500 mg? Thank you! |
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03-09-2020, 08:48 AM | #139 | ||
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Newly Joined
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HangOn had originally posted that her husband had to switch from Cysreplete to L-Methionine. C H K doesn't make a supplement for this reason. The new protocol he was put on was 5,500mg L-Methionine. Anyone know of the particular supplement brand used for this purpose? Thanks
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03-17-2020, 08:57 PM | #140 | ||
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Guest
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What issues is the CysReplete causing that is making you want to consider switching to L-Methionine? Also, are you employing this protocol on your own or under the guidance of a physician?
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