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03-09-2016, 07:04 AM | #51 | ||
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Did he say that he is not able to work with you because of where you live or what? If you are able to work with him on this issue, then do it. Self treating when you do not have the expertise to do so is not wise and will likely not work. |
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03-09-2016, 07:36 AM | #52 | ||
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And he wrote to me , that the lab may don't accept to do test , and my father should to start taking the tested/verified supplements (CHK) otherwise , the results of test may be invalid. As I paid many money for mucuna/tyrosine/5-HTP and .... , so I cant to discard them . I bought for one year of my father consummation . and I paid too many for postage + customs fee , etc .... Anyway I am so thankful to Dr. Stein and I am thinking to his offer as latest option . ------------------ About the condition of my father , today is 3th day without symptoms , But he is very sleepy today !!! I don't know is it natural ? I will wait ,,,, I checked his blood pressure and its OK , heart rate is as usual . his breathing is natural , maybe he is in full rest today , please pray . ------------------ |
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03-09-2016, 07:58 AM | #53 | ||
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I really dont think you will be successful without working with a Dr trained in doing this, as well as it potentially going badly if it is done incorrectly. If you are simply not able to work with Dr. Stein, then I guess you dont really have a choice but to do it on your own. I wish you the best of luck. |
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"Thanks for this!" says: | engsec (03-09-2016) |
03-13-2016, 11:20 AM | #54 | ||
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For those interested, I have just started this protocol last week. It is working very well for me. I don't want to get too excited yet since it's only been days but I can honestly say I haven't felt this good in over a year and a half.
I was diagnosed in July of 2014 and have been taking sinemet since. I titrated up and down from 1 25/100 x 3 per day to 2.5 x3 and back to 1 x 3. I even switched to Rytary for 4 days. Day 1 was bliss, days 2,3,4 were hell. I have taken a few other (tramadol/cannabis) for the symptoms that sinemet didn't touch. I now no longer feel the need for anything else although I will continue CBD. For the first time in over 1.5 years, I want to go back to work. I feel like my life is back, I hope that it continues. The only negative so far was nausea on day 1. By the way, I am not doing this on my own. I am working with a functional medicine doctor. Together we have access to Dr. Stein. |
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"Thanks for this!" says: | engsec (03-14-2016) |
03-18-2016, 02:54 AM | #55 | ||
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I am happy to read that others are finding out about this protocol and it's able to help others.
Unfortunately, my father stopped the protocol only after a month of being on it because the relief of symptoms did not last long enough and he would develop symptoms that were incredibly intolerable for him, he described it as feeling highly irritable and constantly needed help turning and rocking from side to side for temporary relief. At its worst, he was unable to grab his next medication that was even an arm lengths away, he was 90% physically immobile. We had to discontinue the protocol because it required constant supervion, something my family and I were unable to provide at that time. I am still hopeful and optimistic about this protocol, but it's lack of data, tests and cost have my family against the fence with it. I am hoping more PDers can chime in with their own success stories. |
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03-18-2016, 08:21 AM | #56 | ||
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Magnate
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here's a quote from your first post "My dad has always feared prescription drugs in fear of side affects. He recently read an article about an Amino acid protocol treatment by Dr. Marty Hinz and he was able to find a local doctor trained in the protocol which she guarantees can 100% successfully treat him. I was highly skeptical of her claims, but after doing research it seems promising. I would like to get some opinions from anybody here who has been on the protocol with success or failure. Any tips on other successful methods to ease symptoms would be helpful too. " i'm sorry to hear your father is progressing but the bigger question is what are you going to do for him next to try to alleviate his pd symptoms. it seems you are desperate to try anything regardless of the cost and independent proof that it works. if an alternative treatment method worked well, in this age of the internet, we'd know it, the news would spread like wildfire. there would be hundreds of anecdotal stories on these message boards. if i went to a pd support group and said this method worked, i assume a number of advanced pd'ers would try it and it and it it worked for them it might take a year or 2 to spread throughout the pd community, there wouldn't be years and years of "mystery" surrounding this treatment where you have to buy the supplements from HINZ or whomever. best of luck. |
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03-19-2016, 02:02 PM | #57 | ||
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03-19-2016, 02:10 PM | #58 | ||
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Who was your doctor and why did you quit after 3 months? The doctor should have told you that for most parkinsons patients it can take up to 6 months to a year to get stabilized depending on how often you consult with each other.
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03-19-2016, 02:33 PM | #59 | ||
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As i read inside papers , over 95 percent of cases dont show relife in symptoms before reaching to balanced doses of amino acids . Relife of symptoms are like an on/off switch and it will be happen 1-2 days after reaching to balanced doses. In my father case during the treatment i seen some improvement in his lung , skin , hair , nail . But not in pd symptoms , recently he shows some improvement in his pd too . My father is on this protocole for about 5 months . And i am doing it by myself . Coz i am so far from USA. Anyway for my father after 17 years of pd history, i seen some benifit.
My father had all possible symptoms of pd befor of this therapy , but now very of them are changed from sever to mild or relifed. |
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03-19-2016, 04:39 PM | #60 | ||
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"Thanks for this!" says: | engsec (03-20-2016) |
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