I personally am on this protocol for the treatment of concussion related issues. my case is rather complex with multiple areas of the brain being affected, thus it has taken us awhile to narrow in on the correct dosage needed for alleviation of my symptoms. What I can say though is that I have thoroughly done my research on this protocol and from everything I have read, this to me looks like one of the most profound medical discoveries as of recent history. They have 19 peer-reviewed medical papers that outline their findings as well as being both Cma and ama certified. I cannot say for 100% certainty that it works simply because I have not had to work for me yet, but I do believe to a 99% rate that it is legitimate. And if what they are proposing is correct then we are looking at not only the complete management and resolution of parkinsons disease, but any neurotransmitter related disease. As seen on their website at https://neurosupport.files.wordpress...lticolored.jpg. This is huge.

I will leave a few links to a few of their papers that are focused on parkinsons disease that you may be interested in reading. I would highly suggest following through with doing this protocol, I very much believe that you will find great success and results in doing so. make sure you stick with it and dont give up on it even if it takes multiple months for it to work. Id appreciate if you could report back with how it works for your father in a few months if possible. I wish you well.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3068871/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4211847/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238750/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266417/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4113308/
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3355850/

just curious, you don't have parkinsons's, you never posted here before, how did this thread come to your attention?
i'm only going to say peer reviewed is not the same as scientifically proven. you rarely see a drug study done by the company done by the company making the drug as was the case in all these studies. most of the articles aren't actual "trials" but opinion pieces.

i admittedly didn't study these papers, just glanced at them. i found this excerpt hard to believe, general concensus is anything over 250/mg per dose is not going to add anything yet this patient is getting over 10,000mg?

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4113308/
"Changing the daily L-dopa dosing value by 120 mg can have dramatic clinical results. In general, this is independent of the size of the daily L-dopa dose. For example, a patient was taking 10,800 mg of L-dopa per day (equivalent to 90, 120 mg L-dopa pills) in the competitive inhibition state. The patient reported being frozen in the chair and unable to stand. After a pill stop the patient was placed on 89 pills per day (10,680 mg of L-dopa). After a daily decrease in the L-dopa dosing value of only 120 mg, the patient was able to rise without assistance and ambulate. These results are common, not rare."

Great Jeff, stick to it and don't give up too easy.

Bravo Jeff !!!
I hope you get positive results !!
kind regards

CTjeff,

Welcome to the forum.

I'm not a doctor, so take this post as you will.

If I understand your post correctly:
- your father went 5 years without levodopa. Was he on some other medication?
- your father went 3 years with levodopa, with no sign of Parkinson's symptoms. What dose was he on?
- over 2 years he has become immobile. Did your father's doctor try increasing his dose of levodopa during this time?

Some deterioration with time is to be expected, but I'm surprised by the large change in the rate of progression.

In my opinion, this suggests that your father had slowly progressing PD for the first 8 years and has had a much faster progressing "something" for the last 2 years. Has vascular PD and depression been discounted?

Have you discussed this with your father's doctor? It could be something other than IPD.

John

Jeff said in his original post.

"He has been on Carbidopa/levodopa for 5+ years"

"within the last 2 years his symptoms started to become visible and within the last year, he has become almost fully immobile"

regardless, i like john think it' s odd that this poster can only say his father is immobile and he wants to go from C/L to a very expensive, unproven treatment. that seems somewhat unfair to his father. there are other options. so maybe he is leaving out some details.

Hi all ,
My father is 75 years old and have PD for about 17 years , he was using Madopar and paramapixol (Sifrol) always . About 2 years ago he stop walking , talking , eating ....
and he is in bed from that time , he had very bad condition , his last dosing was : Madopar 200/50 x 6 times a day + 3x.36 mg paramapixol . some months ago I read about amino therapy and grab whole of things needed to start the process , I read almost whole papers created by Dr. Hinz and Dr. Alvin Stein .
I am not in USA , so I forced to do all things by myself . I bought L-dopa (mucuna) , tyrosine , cysteine , b6 , folate , selenium and other cofactors from online shops and start the job .
I cant offer test from DBS lab , so I am monitoring him every hours and decide to what to do.
his current dosage of amino acids are :
L-dopa (99% mucuna - source from usa) = 18.6 Gram per day
L-tyrosine = 12 gram per day
L-cysteine= 4.5 gram per day
5-Htp = 100 mg per day
B6= 300 mg per day
I did a pill stop some days ago and it shows that my father need higher dosage of L-dopa .
His main symptoms are = confusion - agitation - delusions and sleep disorders
I don't know when he will reach to balanced dose. I should mention that his overall condition and symptoms are very better from before starting aminos.
I would like to hear if anyone else here is using higher that this dose of L-dopa .
Best Wishes
Babak

Get in contact with Dr. Stein. I believe he works with patients who are not in the usa. You will not be able to successfully treat your father without doing lab tests to control dopamine fluctuations with tyrosine. Also, you need to be certain the substances you are using are actually what they claim to be. The supplement industry is laden with false labeling which means the tyrosine or 5-htp you are buying may not actually be 100% what they say it is which will make it impossible to treat him correctly.

Dr Steins offices phone # - 954-581-8585 or email him at nobones@aol.com

If you decide to call, do it during the week. They are not open on the weekend.

I repeat do NOT do this on your own. You NEED the lab tests as well as the experience of a trained physician in this approach to be able to do it successfully. Get in contact with Dr. Stein, he does consultations over the phone so you should be able to do it.

I know all this because I am a patient of Dr. Steins for the treatment of TBI related issues.

Hi billboby21 ,
Thx for your idea , i just sent an email to Dr. Stein . Will be wait for him . Anyway i would like to know the Amino dosage of a patient with an over 15 yrs history of PD. Just for compare . Coz all of cases in this forum have a history of PD below 15 yrs. i am know that the dosage will differ for every case , just for compare.