The doc just kept quickly increasing the dosages and it got to be quite expensive. CL costs me only $10 a month so I just use that now.

Oh I see, sorry to hear about your bad experience with that doc. There are only a handful of doctors that I know of who have the training with the amino acid therapy to be able to handle a parkinsons patient. Its hard to compete with only $10 a month though haha. I hope the CL is working well for you.

Does anyone know how to find a doctor trained in the Hinz AAT Therapy? Is there a list somewhere?

Try Balancing Neurotransmitters for Better Health – Physician Referral

Dr. Stein retired as he was having health issues that forced him to. He is around 80 years old. He transferred all his patients over to working with Dr. Chad Oler who you can get in contact with here - Contact | Natural Solutions. I have been working with him for a month now and can say that he could be even better than Dr. Stein. He keeps better records and seems to be more receptive to patient ideas towards what I think is going on and what I think we should do next.

Gerry, I have a question for you regarding when you were doing the Hinz protocol.

From what I recall based on your previous posts, the one issue you were having while doing it was having the on/off effect where you would be fine with no symptoms for a certain period of time and then they would come back, etc.

From what I have read based on the research online from Dr. Hinz is the way they control for the on/off effect is by giving adequate tyrosine to control dopamine fluctuations.

I have also read that patients have found that eating food can mess with the effect the dosage has.

So the 2 questions I have are

1. Did you ever get lab tests done to see if fluctuations were occurring and if they were did you then take tyrosine and do recurring lab tests until they were under control?

2. Did you find that food affected the way the pills worked? And if so, lets say you ate the same thing every single day, would that counter act the fluctuations since you would be getting the same ratio of dietary amino acids day in day out?

If these are too long of questions to answer that is totally fine, but if you find the time to answer I would really appreciate it! Thanks

Hi Billbobby21,

I didn't have much trouble with on/off's until I changed doctors. I was looking for a longer on time (and who isn't?) but my doctor was quitting the AA Hinz therapy business so he wasn't able to help me any longer. He had lots of urine tests ordered but the results always came back with ever higher amounts of dopamine in the urine. At some point it is supposed to stop doing that and start going lower. Mine didn't so I was dosed instead by the empirical results he got from the recommendations of Dr. Hinz. That worked for a long time.

The new doctor (who is apparently retired now) had me take tests, too, but got too frustrated by the erratic results. So he started changing the doses of mucuna and tyrosine seemingly off the top of his head. He didn't keep a medical record so he would sometimes go back to doses he had tried before. I kept telling myself that his vast experience was good enough. When the side effects became what I considered life threatening and he wanted to increase the dose even more, I decided to jump ship and try the conventional route.

The tyrosine is supposed to prevent the on/off phenomenon, but it has to be dosed carefully at the right amount. Along with mucuna a dose that is a fraction of a gram under or even over the ideal will not get positive results. Like Goldilock's three bears, it has to be just right and that means carefully weighing out each dose.

My "experimental" doses resulted in some on/off phenomena plus erratic blood pressure problems including fainting as well as anxiety and feelings like I was about to explode. Those have gone away now since changing to conventional generic Sinemet and Comtan. But now my tremors are back, though not dystonia. Constipation is now a daily struggle. So is daytime sleepiness and I am losing my voice so the disease has decided to start progressing, something it didn't do with the Hinz protocol. That might be because I don't take the big daily dose of the glutathione precursor, l-cysteine anymore.

As is typical for levdopa therapy whether mucuna or c/l therapy, food didn't bother it for the first few years, but then it did. It has become a problem with conventional therapy and protein and eating too much interferes with my doses.

I might not be a typical Hinz protocol patient. The doctor said he had no other patients like me. Results, as they say, may vary. The protocol was expensive and weighing and mixing the powders numerous times a day, inconvenient, but it seemed to stop a lot of problems that my current drugstore regimen doesn't. If you try this method find a doctor you can work closely with and who doesn't start swearing when he gets frustrated with his results.

Thanks for answering, Gerry.

Did you ever try going back on the dosage that was working for you before working with Dr. Stein?

I feel that given it works to some capacity indicates what they are doing is not quackery, but they may still be in the process of working through different complications associated with it given it is still ongoing research.

Newbie to the group and very pleased to read the wealth of information here. I was diagnosed in Apr 2013 and waited stubbornly for one yr before taking sinemet. It helped a lot but after only one yr dyskinesia started. the prospect of the ever increasing dyskinesia depressed me. I found the Amino Acid protocol information and accepted the premise that carbidopa causes dyskinesia. I switched to the protocol 3 months ago and within one week dyskinesia was almost completely removed. It has been a rough ride finding the dosage that works for me but I think we have it close. I am only taking 13.5g/d along with 1 Neuroreplete and 6 Cysreplete and 300 mg B6. I am very happy with the results so far.

Just wondering how anyone feels about the premise that carbidopa causes dyskinesia as suggested by the Hinz people? I have mixed some mucuna into my routine so as to not overdo carbidopa in the c/l regimen. Any thouights are welcome as usual....

Eric