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Amino acid protocol Dr. Marty Hinz

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Old 05-20-2018, 01:56 AM   #131
kiwi33
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Thanks jeffreyn.

I had not realised that Dr Hinz has such an "interesting" track record.

As an aside there are many journals like those published by Dove Medical Press which charge extremely high fees,

Some reputable journals charge page fees but these are very modest in comparison to those charged by Dove Medical Press and can be waived if the investigators can show that their research funding does not include a provision for page fees,
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Old 03-10-2019, 05:22 AM   #132
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Well theres a few things that come to mind. Established medicine can become entrenched. Marty had the guts to turn up here. Always people pushing boundaries get flak. Where has mainstream medicine got to with this disease?

The Guy here in Australia who outed Thalidomide was given a very hard time. Big Pharmacy is making billions off the status quo for a lot of disease symptom control. Big Pharm does not do much real self funded R & D. Research is controlled. Cheap cures are sidelined for as long as possible. CBD. Mucuna. etc

Marty is not all wrong i.e. 5HTP effects. B6 issue. Precursor depletions.

No I dont know Marty.
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Old 03-10-2019, 05:04 PM   #133
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Originally Posted by TheFallen View Post
Well theres a few things that come to mind. Established medicine can become entrenched. Marty had the guts to turn up here. Always people pushing boundaries get flak. Where has mainstream medicine got to with this disease?

The Guy here in Australia who outed Thalidomide was given a very hard time. Big Pharmacy is making billions off the status quo for a lot of disease symptom control. Big Pharm does not do much real self funded R & D. Research is controlled. Cheap cures are sidelined for as long as possible. CBD. Mucuna. etc

Marty is not all wrong i.e. 5HTP effects. B6 issue. Precursor depletions.

No I dont know Marty.
Dr William McBride was an obstetrician in the burbs of Sydney who with the observation of many unsung heroes the midwives in the local hospital where they delivered and saw an alarming number of bubs with shocking deformities to women who he had been giving sample packs of the 'new' anti emetic drug thalidomide. I don't recall he was given a hard time.
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Old 03-11-2019, 10:12 AM   #134
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Originally Posted by TheFallen View Post
Well theres a few things that come to mind. Established medicine can become entrenched. Marty had the guts to turn up here. Always people pushing boundaries get flak. Where has mainstream medicine got to with this disease?

The Guy here in Australia who outed Thalidomide was given a very hard time. Big Pharmacy is making billions off the status quo for a lot of disease symptom control. Big Pharm does not do much real self funded R & D. Research is controlled. Cheap cures are sidelined for as long as possible. CBD. Mucuna. etc

Marty is not all wrong i.e. 5HTP effects. B6 issue. Precursor depletions.

No I dont know Marty.
fallen, i suggest you read the doctoral dissertation
BEANS, ROOT AND LEAVES
A HISTORY OF THE CHEMICAL THERAPY OF PARKINSONISM
google brings up the .pdf but i don't know how to get the link, just google BEANS, ROOTS AND LEAVES PARKINSON'S and it should come up in the first page of the search.

i think after reading it you might come to the conclusion that hundreds if not more substances were tested on pd and l-dopa with carbidopa just works better by far than anything else. if mucana worked that great and could compete in the marketplace against ridiculously cheap carbidopa/levodopa it would have supplanted C/L by now in the western world.

what people lose sight of is it that it seems pharma was ready to give up on l-dopa because of the high cost of the grams of l-dopa one had to take before carbidopa was developed and the extreme side affects of that l-dopa, i assume it was darn hard to find doctors wanting to do trials and subject patients to that much misery. if it weren't for some very dedicated researchers maybe we'd be taking mucana now instead of C/L. Sure money was the motivation for pd drug deveopment, but i'm sure glad i have C/L, I couldn't imagine what life for advanced pd'er was like before it, must have been a living hell and i'm sure pd'ers didn't live as long. i'm willing to pay PHARMA something for those extra useful years. as for today, we have no cure which is unacceptable but i understand how hard it is to recruit patients into trials where they undergo brain surgery when C/L works so well and reversible DBS is an option and the disease has no accepted biomarkers yet.


i'll never understand why people show up here and bash C/L when on the other hand it seems most HINZ protocol posters never last for more on the protocol, high cost being a factor since you have to buy everything from your health care practitioner and the difficulty of consuming grams of mucana, and bottom line, nothing about their personal experience can be verified.
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Old 03-11-2019, 04:29 PM   #135
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TheFallen, my personal experience of PD is confined to an uncle of mine who lived in a country town in NZ.

Initially he had problems getting a C/L dose which was effective for him. I suggested that he discuss this with his doctors; this worked for him.

Perhaps this is an approach which would work for you as well.
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Old 03-13-2019, 02:26 AM   #136
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Quote:
Originally Posted by made it up View Post
Dr William McBride was an obstetrician in the burbs of Sydney who with the observation of many unsung heroes the midwives in the local hospital where they delivered and saw an alarming number of bubs with shocking deformities to women who he had been giving sample packs of the 'new' anti emetic drug thalidomide. I don't recall he was given a hard time.
Google this:

A medical whistleblower
William McBride won world recognition for exposing the dangers of thalidomide but incurred the wrath of pharmaceutical firms.

By CHARLIE PEEL
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Old 03-13-2019, 03:01 AM   #137
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Quote:
Originally Posted by soccertese View Post
fallen, i suggest you read the doctoral dissertation
BEANS, ROOT AND LEAVES
A HISTORY OF THE CHEMICAL THERAPY OF PARKINSONISM
google brings up the .pdf but i don't know how to get the link, just google BEANS, ROOTS AND LEAVES PARKINSON'S and it should come up in the first page of the search.

i think after reading it you might come to the conclusion that hundreds if not more substances were tested on pd and l-dopa with carbidopa just works better by far than anything else. if mucana worked that great and could compete in the marketplace against ridiculously cheap carbidopa/levodopa it would have supplanted C/L by now in the western world.

what people lose sight of is it that it seems pharma was ready to give up on l-dopa because of the high cost of the grams of l-dopa one had to take before carbidopa was developed and the extreme side affects of that l-dopa, i assume it was darn hard to find doctors wanting to do trials and subject patients to that much misery. if it weren't for some very dedicated researchers maybe we'd be taking mucana now instead of C/L. Sure money was the motivation for pd drug deveopment, but i'm sure glad i have C/L, I couldn't imagine what life for advanced pd'er was like before it, must have been a living hell and i'm sure pd'ers didn't live as long. i'm willing to pay PHARMA something for those extra useful years. as for today, we have no cure which is unacceptable but i understand how hard it is to recruit patients into trials where they undergo brain surgery when C/L works so well and reversible DBS is an option and the disease has no accepted biomarkers yet.


i'll never understand why people show up here and bash C/L when on the other hand it seems most HINZ protocol posters never last for more on the protocol, high cost being a factor since you have to buy everything from your health care practitioner and the difficulty of consuming grams of mucana, and bottom line, nothing about their personal experience can be verified.
I take L-Dopa/Benzerazide 50/12.5 mg tds and peeps cant tell I have PD. Im 10 yrs into a diagnosis aged 58 and look 44, was told 35 today ! (and that was nude) How? Being open? Wrong diagnosis? I just stopped taking rasigaline 1mg od and pramipexole ER 1.5 mg od this week without informing the neuro. I know the protocols I was an RN. Protocols like any rules must cover the lowest denominators, like bad drivers. Im a touch more symptomatic but have no nausea. There is leeway to experiment carefully. I took 5HTP and B6 today. When I have something useful to say to the neuro I'll tell them.

Without a PD etiology and with symptomatic treatment only existing and no real progress being made (maybe GDNF) my course of action seems reasonable. Re Hinz he is just one of many sources of data Ill tap.
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