Parkinson's Disease Tulip


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Old 10-22-2015, 03:25 PM #1
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pegleg pegleg is offline
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Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
pegleg pegleg is offline
Senior Member
pegleg's Avatar
 
Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
Default DBS - Acronym for "Don't believe so?"

After talking myself out of having DBS for 15 years, I no longer can say the acronym stands for "Don't believe so."

Unless I get cold feet between now and Monday, we will drive the 5-hour drive to Vanderbilt in Nashville and begin the first of three surgical procedures as required by Vandy's DBS (deep brain stimulation) protocol on Tuesday morning at the crack of dawn.

Why have I procrastinated so long? Because I could. Why don't I wait for something less invasive? Because I can't. You see, the fall revealed worsening of my spinal stenosis, having already had two cervical fusion operations

It all started a few months ago when I fell. I don't fall everyday or several times a day like some of you do, but I "almost" fall everyday, and my body is becoming permanently twisted and distorted due to dyskinesia and dystonia. We may never know, but we assume that the dyskinesia and its resulting dystonia are due my 20-year regime of dopamine replacement therapy. Scientist are pretty sure that the culprit is Sinemet (carbidopa/levodopa), and these side effects can often be worse than Parkinson's itself.

So if you believe in divine intervention, put it in "start" position. If you prefer sending thoughts, good vibes, or karma - I will accept that, too.
My next surgery will be November 4, when they implant all of the DBS hardware.

OK EVERYBODY - circle up for a group hug!

Peg
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